Conducting Violence and Mental Health Research with Female Sex Workers during the COVID-19 Pandemic: Ethical Considerations, Challenges, and Lessons Learned from the Maisha Fiti Study in Nairobi, Kenya
Authors:
- Mary Kung’uMKMary Kung’u
- Rhoda KabutiRKRhoda Kabuti
- Hellen BabuHBHellen Babu
- on behalf of The Maisha Fiti Study ChampionsOCon behalf of The Maisha Fiti Study Champions
- Chrispo NyamweyaCNChrispo Nyamweya
- Monica OkumuMOMonica Okumu
- Anne MaheroAMAnne Mahero
- Zaina JamaZJZaina Jama
- Polly NgurukiriPNPolly Ngurukiri
- Emily NyarikiEmily Nyariki
- Mamtuti PannehMPMamtuti Panneh
- Pooja ShahPSPooja Shah
Open Access
- 23 May 2023
- journal article
- research article
- Published by MDPI AG in International Journal of Environmental Research and Public Health
- Vol. 20 (11) , 5925
Abstract
Conducting violence and mental health research during the COVID-19 pandemic with vulnerable groups such as female sex workers (FSWs) required care to ensure that participants and the research team were not harmed. Potential risks and harm avoidance needed to be considered as well as ensuring data reliability. In March 2020, COVID-19 restrictions were imposed in Kenya during follow-up data collection for the Maisha Fiti study (n = 1003); hence data collection was paused. In June 2020, the study clinic was re-opened after consultations with violence and mental health experts and the FSW community. Between June 2020 and January 2021, data were collected in person and remotely following ethical procedures. A total of 885/1003 (88.2%) FSWs participated in the follow-up behavioural–biological survey and 47/47 (100%) participated in the qualitative in-depth interviews. A total of 26/885 (2.9%) quantitative surveys and 3/47 (6.4%) qualitative interviews were conducted remotely. Researching sensitive topics like sex work, violence, and mental health must guarantee study participants’ safety and privacy. Collecting data at the height of COVID-19 was crucial in understanding the relationships between the COVID-19 pandemic, violence against women, and mental health. Relationships established with study participants during the baseline survey—before the pandemic—enabled us to complete data collection. In this paper, we discuss key issues involved in undertaking violence and mental health research with a vulnerable population such as FSWs during a pandemic. Lessons learned could be useful to others researching sensitive topics such as violence and mental health with vulnerable populations.Keywords
Funding Information
- Medical Research Council (MR/R023182/1)
This publication has 24 references indexed in Scilit:
- Sex workers must not be forgotten in the COVID-19 responseThe Lancet, 2020
- Forecasting the scale of the COVID-19 epidemic in KenyamedRxiv, 2020
- Neonatal, infant, and child mortality among women exposed to intimate partner violence in East Africa: a multi-country analysisBMC Women's Health, 2020
- Effective Engagement Requires Trust and Being TrustworthyMedical Care, 2018
- Do Research Participants Trust Researchers or Their Institution?Journal of Empirical Research on Human Research Ethics, 2018
- Ethics in Psychiatric Research: Issues and RecommendationsIndian Journal of Psychological Medicine, 2017
- The ethics of mental health survey research in low- and middle- income countriesCambridge Prisms: Global Mental Health, 2016
- Quantitative conversations: the importance of developing rapport in standardised interviewingQuality & Quantity, 2014
- Burden of HIV among female sex workers in low-income and middle-income countries: a systematic review and meta-analysisThe Lancet Infectious Diseases, 2012
- Revisiting the concept of ‘vulnerability’Social Science & Medicine, 2000