Is there a doctor in the house?
- 6 September 2011
- journal article
- research article
- Published by Springer Nature in Journal of Community Genetics
- Vol. 3 (2) , 105-112
Abstract
Over the last couple of years, many commercial companies, the majority of which are based in the USA, have been advertising and offering direct-to-consumer (DTC) genetic testing services outside of the established health care system, and often without any involvement from a health care professional. In the last year, however, a number of DTC genetic testing companies have changed their provision model such that consumers must now contact a health care professional before being able to order the genetic testing service. In discussing the advent of this new model of service provision, this article also reviews the ethical and social issues surrounding DTC genetic testing and addresses the potential motivations for change, some barriers to achieving truly appropriate medical supervision and the present reality of DTC genetic testing for some psychiatric and neurological disorders. Since the advent of these commercial activities, critics have pointed a finger at the lack of medical supervision surrounding these services. The discussion herein, however, reveals how difficult it may be, despite the addition of a physician, to actually achieve adequate medical supervision within the present context of DTC genetic testing.Keywords
This publication has 38 references indexed in Scilit:
- Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing marketJournal of Community Genetics, 2010
- Genetic testing clamp downNature Biotechnology, 2010
- Direct-to-Consumer Personal Genome Services: Need for More OversightAMA Journal of Ethics, 2009
- Health-related direct-to-consumer genetic testing: a review of companies’ policies with regard to genetic testing in minorsFamilial Cancer, 2009
- Direct-to-consumer genome scanning services. Also for children?Nature Reviews Genetics, 2009
- Europe to ban direct-to-consumer genetic tests?Nature Biotechnology, 2008
- ACOG Committee Opinion No. 409: Direct-to-Consumer Marketing of Genetic TestingObstetrics & Gynecology, 2008
- Gene Tests for Psychiatric Risk Polarize ResearchersScience, 2008
- The Ethical Challenges of Direct-to-Consumer Genetic TestingJournal of Business Ethics, 2007
- Genetics education for primary-care providersNature Reviews Genetics, 2002