Inclusive Research as a Way of Empowering People with Intellectual Disabilities. Reflections of the Training Participants
Authors:
Open Access
- 29 December 2023
- journal article
- research article
- Published by SPED sp. z o.o. in International Journal of Special Education
- Vol. 38 (3) , 16-27
Abstract
The potential of inclusive research has been indicated in many studies. Yet, it is almost unknown in Poland. A group of researchers from two academic centers invited people with Intellectual Disabilities (ID) to participate in a study. The study aimed to undertake inclusive research projects relevant to persons with ID. Prospective co-researchers with ID were offered training focused on issues related to scientific research and improving social skills necessary for playing various roles, including those of self-advocates. A qualitative, interpretive phenomenological analysis was used to explore the co-researchers’ experiences related to the training. Four main themes emerged: 1) circumstances associated with joining the training, 2) benefits of the training, 3) challenges as a researcher, and 4) training needs. The potential of the training was significant both in terms of expanding the psychosocial skills of co-researchers and integrating the group. The data confirmed the usefulness of the training in terms of preparation for the role of a co-researcher and increasing life skills critical in other areas of social life.Keywords
This publication has 46 references indexed in Scilit:
- Building capacity to engage in co-produced research: reflections from a digital storytelling projectDisability & Society, 2022
- ‘Working together is like a partnership of entangled knowledge’: exploring the sensitivities of doing participatory data analysis with people with learning disabilitiesInternational Journal of Social Research Methodology, 2021
- Challenges of having a loving partner: the views of adults with intellectual disabilitiesInternational Journal of Developmental Disabilities, 2019
- What makes a good self-advocacy project? The added value of co-productionDisability & Society, 2019
- Understanding health disparities for individuals with intellectual disability using photovoiceScandinavian Journal of Occupational Therapy, 2018
- TimeBanking: towards a co-produced solution for power and money issues in inclusive researchInternational Journal of Social Research Methodology, 2016
- Inclusive research as a site for lifelong learning: Participation in learning communitiesStudies in the Education of Adults, 2016
- Diverse faces of inclusive research: reflecting on three research studiesScandinavian Journal of Disability Research, 2014
- Changing Disability Research: Participating and Emancipatory Research with Disabled PeoplePhysiotherapy, 1997
- On the Road to Damascus: First Steps towards Changing the Relations of Disability Research ProductionDisability, Handicap & Society, 1992