Models of care for adolescent and young adult cancer programs
- 16 September 2019
- journal article
- review article
- Published by Wiley in Pediatric Blood & Cancer
- Vol. 66 (12) , e27991
Abstract
This review draws on the experience of adolescent and young adult (AYA) cancer clinicians from Australia, the United States, and the United Kingdom to summarize common aspects of models of care implemented in their countries. The principles underpinning these models include patient‐ and family‐focused care informed by an understanding of normal AYA development, enhancing existing adult or pediatric cancer services to meet the needs of AYA, and promoting collaboration between pediatric and adult oncologists. Common elements of AYA cancer care include establishing an AYA multidisciplinary team that integrates medical and psychosocial care, efforts to centralize complex care, providing access and equity for all AYA, promoting clinical trials, and helping facilitate transition to healthy survivorship. Several organizational approaches are described, noting that local program development depends on resources, infrastructure, and assessment of unmet needs within the region. The development of national networks provides opportunities for shared learning and approaches to evaluation.Keywords
This publication has 52 references indexed in Scilit:
- Starting an Adolescent and Young Adult Program: Some Success Stories and Some Obstacles to OvercomeJournal of Clinical Oncology, 2010
- Quality Cancer Care for Adolescents and Young Adults: A Position StatementJournal of Clinical Oncology, 2010
- The Quid Pro Quo of pediatric versus adult services for older adolescent cancer patientsPediatric Blood & Cancer, 2009
- Secondary Traumatic Stress in Oncology StaffCancer Nursing, 2009
- Site of Oncologic Specialty Care for Older Adolescents in UtahJournal of Clinical Oncology, 2007
- Access to Pediatric Cancer Care by Age, Race, and Diagnosis, and Outcomes of Cancer Treatment in Pediatric and Adolescent Patients in the State of GeorgiaJournal of Clinical Oncology, 2007
- Adolescent and young adult cancer: a revolution in evolution?Internal Medicine Journal, 2006
- Guidelines for Pediatric Cancer CentersPediatrics, 2004
- Access to Quality Cancer CareJournal of Pediatric Hematology/Oncology, 1998
- Family-Centred ServicePhysical & Occupational Therapy In Pediatrics, 1998