Infrastructure and workforce development processes inspired by Lived Experience Experts and grounded in health equity for the Bleeding Disorders Research Collaborative
Authors:
- Lynn MalecLynn Malec
- Moses E. MilesMMMoses E. Miles
- Lauren E. AmosLauren E. Amos
- Samantha A. CarlsonSamantha A. Carlson
- Donna DiMicheleDonna DiMichele
- Iftikhar HaiderIHIftikhar Haider
- Andra H. JamesAndra H. James
- Keri L. NorrisKNKeri L. Norris
- Kristin Paulyson-NuñezKPKristin Paulyson-Nuñez
- Michael RechtMichael Recht
- Fiona RobinsonFRFiona Robinson
- Maria E. SantaellaMaria E. Santaella
Open Access
- 31 July 2026
- journal article
- research article
- Published by Taylor & Francis in Expert Review of Hematology
- Vol. 19 (sup1) , 43-62
Abstract
1. 1.1. Inheritable bleeding disorders are usually characterized by abnormal bleeding into joints, vital organs, or mucocutaneous tissues [1–4]. With the exception of von Willebrand disease, they a...Keywords
Funding Information
- National Bleeding Disorders Foundation
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