Making the invisible more visible: Reflections on practice‐based humanising lifeworld‐led research – existential opportunities for supporting dignity, compassion and wellbeing
Open Access
- 24 June 2021
- journal article
- research article
- Published by Wiley in Scandinavian Journal of Caring Sciences
- Vol. 36 (4) , 1037-1045
Abstract
Background: The need for dignity and compassion in healthcare is enshrined in policy, but is often difficult to enact in practice and what is precisely meant by these concepts is unclear. In this paper, we have explored theoretical underpinnings which form the basis of a lifeworld‐led approach which was used in a research study to support the humanity of service providers and users alike.Aim: In this article, we share our analysis of what we have learnt after undertaking an innovative appreciative action research project with patients and staff in a stroke ward with the aim of exploring if a novel phenomenologically driven and philosophically derived humanising framework could be applied in health care. Following the research, we wanted to develop a theoretical understanding of the processes occurring during the research in order to provide a framework and language which could be used to support practical lifeworld developments in the future. We analysed the approach through Participatory and Appreciative Action Reflection.Findings: As researchers, we found that the approach was underpinned by four key existential principles. The first principle was recognising a mutually arising reality rather than a reality ‘out there’. The second was recognising a reality which was constantly changing rather than ‘fixed’. The third was recognising that we needed to work from within, as part of a human living system rather than trying to control reality from the ‘outside’. Finally, we recognised that this reality could only be accessed through human knowing, including embodied knowing rather than intellectual knowing alone. These principles challenged many of the usual ways of thinking and working within research and healthcare contexts.Conclusion: Understanding the processes and reality in this way gave new perspectives; enhancing our understandings and views of ourselves, what is important and most importantly what is possible in caring systems.Keywords
Funding Information
- Burdett Trust for Nursing
This publication has 22 references indexed in Scilit:
- “Caring for insiderness”: Phenomenologically informed insights that can guide practiceInternational Journal of Qualitative Studies on Health and Well-being, 2014
- Research based empathic knowledge for nursing: A translational strategy for disseminating phenomenological research findings to provide evidence for caring practiceInternational Journal of Nursing Studies, 2011
- Patient‐centredness and its challenge of prevailing professional normsMedical Education, 2010
- Help, I’m losing patient‐centredness! Experiences of medical students and their teachersMedical Education, 2010
- Embodying Nursing OpenheartednessJournal of Holistic Nursing, 2009
- The humanization of healthcare: A value framework for qualitative researchInternational Journal of Qualitative Studies on Health and Well-being, 2009
- Lifeworld-led healthcare is more than patient-led care: an existential view of well-beingMedicine, Health Care and Philosophy, 2008
- Participatory and appreciative action and reflection (PAAR) – democratizing reflective practicesReflective Practice, 2008
- Being With That: The Relevance of Embodied Understanding for PracticeQualitative Health Research, 2008
- The primacy of the body, not the primacy of perceptionMan and World, 1992