Exploring Perceptions and Motivations for Research Participation Among Black Communities

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Abstract
Despite efforts to promote inclusivity in behavioral health research, Black communities remain significantly underrepresented. There is a critical gap in research examining their own perspectives regarding research participation, which fails to capture their unique health disparities or responses to treatment, reducing the generalizability and effectiveness of medical interventions. The purpose of this study was to explore perceptions of research participation among Black adults residing in Western New York and identify factors that influence their willingness for research engagement. This qualitative study used semi-structured interviews with 95 Black participants in Western New York who were enrolled in a randomized controlled trial of a behavioral health intervention. Thematic analysis identified key themes related to motivations, barriers, and recommendations for improving engagement in research. Two main areas of focus emerged: (1) participants' perceived benefits of research participation and (2) their recommendations for increasing representation in research. Within these areas, six key themes were identified. Participants emphasized the importance of well-being, advocating for racial representation in research, and mental health promotion. They also revealed that community involvement, accountability, and dynamic recruitment by researchers are essential strategies to increase Black engagement. Research participation among Black communities is influenced by historical context, perceived personal and communal benefits, and the behavior of researchers themselves. Future studies should prioritize community-based participatory research (CBPR) to improve relationship-building, inclusion, and culturally attuned behavioral health research.
Funding Information
  • Patient-Centered Outcomes Research Institute (Patient-Centered Outcomes Research Institute)

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