Dance at home for people with Parkinson’s during COVID-19 and beyond: Participation, perceptions and prospects

Authors:
  • MGMichelle Groves
    Michelle Groves
  • DLDavid Leventhal
    David Leventhal
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Abstract
Emerging evidence shows that dance can provide both physical and non-physical benefits for people living with Parkinson’s disease (PD). The suspension of in-person dance classes during the COVID-19 pandemic necessitated a transition to remote provision via live and recorded digital media. An online survey explored accessibility of and engagement with these home-based dance programs, as well as perceived benefits. The survey was co-developed by researchers and dance program providers, with input from people with PD and physiotherapists. Responses were collected from 276 individuals, including 178 current users of home-based programs, the majority of whom were participating at least once per week. Among respondents not currently using digital resources, lack of knowledge and motivation were the primary barriers. Most participants (94.9%) reported that home based practice provided some benefits, including physical (e.g., balance, posture) and non-physical (e.g., mood, confidence) improvements. Participants valued the convenience and flexibility of digital participation, but noted limitations including reductions in social interaction, support from instructors and peers, and routine. There was a strong preference (70.8%) for continuing with home-based practice alongside in-person classes in the future.The results indicate that at-home dance is accessible and usable for people with PD, and that some of the previously-reported benefits of dance may be replicated in this context. While COVID-19 expedited the development of digital programs, these will likely remain a key element of future provision for people with PD. The findings will inform the further development of resources and research into outcomes of home-based dance participation.