Community Hospice Nurses’ Perspectives on Needs, Preferences, and Challenges Related to Caring for Children With Serious Illness

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Abstract
Approximately 500 000 children in the US have a serious illness, of whom 10% die annually,1 and of those, 11% die at home2—a number that continues to increase.3 Optimal provision of home-based hospice services can lessen symptom burden and improve quality of life,4 reduce parental psychosocial stress,5,6 decrease costs,7,8 and limit clinician distress.6 Accordingly, the Institute of Medicine and the American Academy of Pediatrics advocate for the early integration of palliative and hospice services for children with serious illness.9-11

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