‘… but I live in hope …’ how the term ‘survivor’ impacts identity and feelings of inclusivity in survivorship services following ovarian cancer treatment

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Abstract
To understand how individuals with ovarian cancer interpret and identify with the term 'survivor' and if this impacts survivorship service uptake and whether individuals feel included or identify with these services following treatment within the Australian context. Semi-structured interviews were conducted with 18 individuals aged 40-72 (M = 57). Using a social identity theory lens, data were analysed using reflexive thematic analysis. Two themes were generated, 'But I live in hope': How social constructs of the term 'survivor' impact on its meaning and inclusion into self-identity' and 'Forgotten or excluded: The realities of care after treatment' with the subtheme 'Advocacy and growth: Subversion from exclusion'. Participants rejected the 'survivor' identity due to connotations of unachievable finality. This was reinforced by the absence of support services routinely offered or available following treatment. Through exclusion, participants created their own support groups and joined advocacy groups, thereby redefine/reinterpret their identities separate to the 'survivor' narrative and providing connection and purpose. Support services and strategies (such as social prescribing) should be routinely offered following treatment within Australia. Terminology should be informed by individuals with ovarian cancer, thereby supporting moving forward with life in ways that are tailored to specific needs and wants.

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