An internet-based survey of people with chronic lymphocytic leukemia in the UK

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Abstract
Background Chronic lymphocytic leukemia (CLL) is a common adult blood cancer. There is no cure, but a third of people never require treatment and new targeted drugs have improved outcome. Understanding the experience of living with CLL is important for clinicians, health care providers and researchers. Methods This was an open internet-based survey of people with CLL, conducted by people with CLL. It was advertised via email and social media. Findings 1,009 people completed the survey. Respondents were more likely to be women (526, 52% female; 482, 48% male) and were younger at diagnosis (574, 57% Conclusions Fatigue is a key problem for people with CLL. CLL impacts on the physical and emotional aspects of quality of life.

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