Decision-making by Adolescents and Parents of Children With Cancer Regarding Health Research Participation
- 1 September 2009
- journal article
- research article
- Published by American Academy of Pediatrics (AAP) in Pediatrics
- Vol. 124 (3) , 959-965
Abstract
BACKGROUND: Low rates of participation of adolescents and young adults (AYAs) in clinical oncology trials may contribute to poorer outcomes. Factors that influence the decision of AYAs to participate in health research and whether these factors are different from those that affect the participation of parents of children with cancer.Keywords
This publication has 25 references indexed in Scilit:
- Providing Research Results to Participants: Attitudes and Needs of Adolescents and Parents of Children With CancerJournal of Clinical Oncology, 2009
- Influence of Clinical Communication on Patients' Decision Making on Participation in Clinical TrialsJournal of Clinical Oncology, 2008
- The challenges of clinical trials for adolescents and young adults with cancerPediatric Blood & Cancer, 2008
- Different Rates of Clinical Trial Enrollment Between Adolescents and Young Adults Aged 15 to 22 Years Old and Children Under 15 Years Old With Cancer at a Children's HospitalJournal of Pediatric Hematology/Oncology, 2007
- Challenges in the recruitment of adolescents and young adults to cancer clinical trialsCancer, 2007
- Attitudes towards clinical research among cancer trial participants and non-participants: an interview study using a Grounded Theory approach: Table 1Journal of Medical Ethics, 2007
- The return of research results to participants: Pilot questionnaire of adolescents and parents of children with cancerPediatric Blood & Cancer, 2007
- Adolescents and young adults with cancerCancer, 2006
- Why Cancer Patients Enter Randomized Clinical Trials: Exploring the Factors That Influence Their DecisionJournal of Clinical Oncology, 2004
- “Why don’t they just tell me straight, why allocate it?” The struggle to make sense of participating in a randomised controlled trialSocial Science & Medicine, 2002