Stories That Speak Back: Participatory Dissemination Through Art After Brain Injury
Open Access
- 8 June 2026
- journal article
- Published by Specialty Publications in Journal of Participatory Research Methods
- Vol. 7 (2)
Abstract
Acquired brain injury (ABI) may lead to negative functional outcomes even years post injury. Rehabilitation clinicians can help to remediate some of these deficits, however there is a gap in research translation to implementation. While there are many possible ways to address this, one way is to directly engage with individuals and communities. The current work describes our participatory-focused approach to previous research studies in collaboration with Hinds’ Feet Farm and the Unmasking Brain Injury (UBI) project. UBI is a community-based project that fosters agency, education, and social connection for people with ABI. We outline our methods and outputs of participatory dissemination, including creative products and shared platforms, which offers a mode for equitable, survivor-led knowledge generation for research and practice. This work contributes to participatory action research methodology by illustrating how longstanding community art practices can operate as infrastructures for mutual learning, rehabilitation knowledge, and community and scholarship facing products.Keywords
This publication has 27 references indexed in Scilit:
- Unmasking brain injury: Arts-based methods of communicating emotional experiences of ABIArchives of Physical Medicine and Rehabilitation, 2024
- Using Storytelling to Reflect on Experiences with Acquired Brain Injury: The Unmasking ProjectArchives of Physical Medicine and Rehabilitation, 2024
- The power of community-based participatory research (CBPR).Psychiatric Rehabilitation Journal, 2024
- Art therapy for military service members with post-traumatic stress and traumatic brain injury: Three case reports highlighting trajectories of treatment and recoveryThe Arts in Psychotherapy, 2019
- Art therapy for PTSD and TBI: A senior active duty military service member’s therapeutic journeyThe Arts in Psychotherapy, 2016
- Return to Work and Social Communication Ability Following Severe Traumatic Brain InjuryJournal of Speech, Language, and Hearing Research, 2016
- Practice-Based Research: Another Pathway for Closing the Research–Practice GapJournal of Speech, Language, and Hearing Research, 2015
- Practice-Based Evidence Research in Rehabilitation: An Alternative to Randomized Controlled Trials and Traditional Observational StudiesArchives of Physical Medicine and Rehabilitation, 2012
- Dissemination of Results in Community-Based Participatory ResearchAmerican Journal of Preventive Medicine, 2010
- Beyond the Evidence‐Based Practice Paradigm to Achieve Best Practice in Rehabilitation Medicine: A Clinical ReviewPM&R, 2009