Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users
Open Access
- 22 May 2012
- journal article
- research article
- Published by Springer Nature in BMC Medical Informatics and Decision Making
- Vol. 12 (1) , 39
Abstract
Data stored in personally controlled health records (PCHRs) may hold value for clinicians and public health entities, if patients and their families will share them. We sought to characterize consumer willingness and unwillingness (reticence) to share PCHR data across health topics, and with different stakeholders, to advance understanding of this issue.Keywords
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