Who's Doing the Math? Are We Really Compensating Research Participants?
Open Access
- 1 September 2010
- journal article
- Published by SAGE Publications in Journal of Empirical Research on Human Research Ethics
- Vol. 5 (3) , 57-65
Abstract
Although compensation for expenses to participants in research projects is considered important and the primary reason for paying, there is no evidence to support that investigators and IRB members actually calculate participant cost. Payment recommendations for six hypothetical studies were obtained from a national survey of IRB chairpersons (N = 353) and investigators (N = 495). Survey respondents also recommended payment for specific study procedures. We calculated participant cost for the six hypothetical cases both by procedures and by time involvement. A large percentage recommended only token payments for survey, registry, and medical record review studies. Most chose payment for pharmaceutical studies but the recommended payment did not compensate for calculated costs. Results suggest that compensation and reimbursement as the primary reasons for paying research participants may not match actual practice.Keywords
This publication has 22 references indexed in Scilit:
- Why Do We Pay? A National Survey of Investigators and IRB ChairpersonsJournal of Empirical Research on Human Research Ethics, 2010
- Increasing the amount of payment to research subjectsJournal of Medical Ethics, 2008
- Strategies to Minimize Risks and Exploitation in Phase One Trials on Healthy Subjects*The American Journal of Bioethics, 2006
- Payment of clinical research subjectsJournal of Clinical Investigation, 2005
- For love or money? An exploratory study of why injecting drug users participate in researchAddiction, 2001
- To pay or not to pay: respondents' motivation for participating in researchAddiction, 2001
- Money for Research Participation: Does It Jeopardize Informed Consent?The American Journal of Bioethics, 2001
- How Much Are Subjects Paid to Participate in Research?The American Journal of Bioethics, 2001
- What's the Price of a Research Subject?New England Journal of Medicine, 1999
- Motivation for participation in clinical trials of drugs for the treatment of asthma, seasonal allergic rhinitis, and perennial nonallergic rhinitisAnnals of Allergy, Asthma & Immunology, 1996