Multiracial perspectives on ethnoracial categorization in Alzheimer's disease research

Authors:
Open Access
Publisher website
Google Scholar
Abstract
INTRODUCTION: There is a growing proportion of Alzheimer's disease (AD) research participants identifying as two or more races; however, analyses primarily rely on monoracial categories, resulting in exclusion or recategorization of Multiracial participants. METHODS: We conducted semi‐structured qualitative interviews with 21 Multiracial adults to explore preferences and perceptions of racial categorization and reclassification in AD research. Recruitment prioritized diverse Multiracial identities, and interviews were evaluated using thematic analysis. RESULTS: Participants expressed varied preferences for racial categorization, with many assuming a monoracial standard. Preferences corresponded to both racial identity and assumed racial identification, and depended on available options. Participants responded to reclassification with calls for increased transparency about study methods and intended data usage, and concerns for racial misrepresentation. DISCUSSION: Findings underscore the utility of multiple questions and response options for racial categorization, researcher respect of participant experiences and the evolving nature of classification systems, and clear communication about analytic decisions.
Funding Information
  • National Institute of General Medical Sciences (P20GM109025)

This publication has 56 references indexed in Scilit: