Exploring the feasibility of validating early developmental screening tools for American Indian and Alaska Native children
Authors:
- Nancy L. AsdigianNANancy L. Asdigian
- Nancy Rumbaugh WhitesellNWNancy Rumbaugh Whitesell
- The Tribal Early Childhood Research Center PEDS Community of LearningTLThe Tribal Early Childhood Research Center PEDS Community of Learning
- 30 May 2022
- journal article
- research article
- Published by Wiley in Infant Mental Health Journal: Infancy and Early Childhood
- Vol. 43 (4) , 576-588
Abstract
Screening children from birth through age 5 is critical to early identification of challenges and referral to intervention to support optimal development. Screening of American Indian and Alaska Native (AIAN) children lags behind that of other children, partly due to the lack of screening tools validated for this population. This study tested the feasibility of an online data collection strategy for use in a future study of the validity of existing screening instruments for AIAN children. Parents of AIAN children in four communities were recruited to complete screeners, provide demographic information, and provide feedback on experiences with online data collection. Participants were given the option of receiving screening results from the local early childhood program through which they were recruited. 240 participants began the process, 183 were enrolled in a partner program and reported a birthdate for at least one AIAN child, 157 had an age-eligible child, 81 began the consent process, 62 consented, and 39 fully completed data collection. Most participants were female and AIAN, the majority reported that online data collection was easy. Collecting screener validation data on a large sample of AIAN children may be able to utilize online data collection tools, with in-person support to facilitate participation.Keywords
Funding Information
- Administration for Children and Families (90PH0027, 90PH0030)
- National Institutes of Health (UL1 TR002535)
This publication has 10 references indexed in Scilit:
- Community perspectives on developmental screening of American Indian and Alaska Native childrenInfant Mental Health Journal: Infancy and Early Childhood, 2022
- Decolonizing Methodologies2021
- Preliminary Evaluation of a Brief Autism Screener for Young ChildrenJournal of Developmental & Behavioral Pediatrics, 2018
- Improving Diagnosis in Health Care2015
- THE SURVEY OF WELL-BEING OF YOUNG CHILDREN: RESULTS OF A FEASIBILITY STUDY WITH AMERICAN INDIAN AND ALASKA NATIVE COMMUNITIESInfant Mental Health Journal: Infancy and Early Childhood, 2015
- Minorities Are Disproportionately Underrepresented in Special EducationEducational Researcher, 2015
- Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics supportJournal of Biomedical Informatics, 2009
- Ages & Stages Questionnaires®: Social-Emotional2002
- Developmental Surveillance and Screening of Infants and Young ChildrenPediatrics, 2001
- The Efficacy of Diagnostic ImagingMedical Decision Making, 1991