Refining Cultural Adaptations of a Behavioral Intervention for Latino Caregivers of People Living With Dementia: Qualitative Interview Study in Washington State
Open Access
- 11 January 2024
- journal article
- research article
- Published by JMIR Publications Inc. in JMIR Aging
- Vol. 7, e53671
Abstract
Background: In the United States, Latino caregivers of individuals with dementia face unique challenges and an elevated risk of adverse health outcomes. Despite the increasing prevalence of Alzheimer disease and related dementias among Latino adults, few evidence-based interventions are tailored to their cultural context. To address this gap, we examined the cultural adaptations required for the STAR caregivers (STAR-C) virtual intervention, an evidence-based intervention that educates family caregivers to manage behavioral and psychological symptoms of dementia. While STAR-C has shown effectiveness, neither the original in-person nor the virtual intervention considered the distinct experiences of Latino caregivers, who often bring culturally significant values into caregiving interactions. Objective: This study’s objective was to test and refine the preliminary cultural adaptations of the STAR-C web-based training modules for Latino caregivers of people living with dementia. Methods: Through qualitative interviews with 15 Latino caregivers in Washington State, we identified key adaptations to enhance the cultural relevance of the web-based training modules. Results: The interviews highlighted 4 main themes for adaptation: the delivery of the STAR-C web-based training modules, comprehensive dementia education, simplified problem-solving strategies, and prioritizing caregiver well-being. Conclusions: This study’s findings informed the development of culturally adapted STAR-C web-based training modules that aim to provide tailored support to Latino caregivers. While further research is needed to assess the efficacy of these adaptations, our work contributes to bridging the gap in dementia caregiving for Latino families, potentially reducing health disparities and enhancing health care services for this population.Keywords
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This publication has 18 references indexed in Scilit:
- Digital Health Strategies to Fight COVID-19 Worldwide: Challenges, Recommendations, and a Call for PapersJournal of Medical Internet Research, 2020
- New Directions to Advance Family Caregiving ResearchThe Gerontologist, 2020
- Use of Human-Centered Design to Improve Implementation of Evidence-Based Psychotherapies in Low-Resource Communities: Protocol for Studies Applying a Framework to Assess UsabilityJMIR Research Protocols, 2019
- Advancement in the maturing science of cultural adaptations of evidence-based interventions.Journal of Consulting and Clinical Psychology, 2017
- In the Information Age, do dementia caregivers get the information they need? Semi-structured interviews to determine informal caregivers’ education needs, barriers, and preferencesBMC Geriatrics, 2016
- Adopting Evidence-Based Caregiver Training Programs in the Real World: Outcomes and Lessons Learned From the STAR-C Oregon Translation StudyJournal of Applied Gerontology, 2015
- A Review of Ethnicity, Culture, and Acculturation Among Asian Caregivers of Older Adults (2000-2012)Sage Open, 2015
- Cultural adaptations of behavioral health interventions: A progress report.Journal of Consulting and Clinical Psychology, 2013
- African American, Chinese, and Latino Family Caregivers' Impressions of the Onset and Diagnosis of Dementia: Cross-Cultural Similarities and DifferencesThe Gerontologist, 2005
- Training Community Consultants to Help Family Members Improve Dementia Care: A Randomized Controlled TrialThe Gerontologist, 2005