Resilience outstrips the negative effect of caregiver burden on quality of life among parents of children with type 1 diabetes: An Application of Johnson–Neyman Analysis
- 3 March 2021
- journal article
- research article
- Published by Wiley in Journal of Clinical Nursing
- Vol. 30 (13-14) , 1884-1892
Abstract
Aims and objectives: To determine whether resilience buffers the deleterious consequences of caregiver burden on quality of life among parents of children with type 1 diabetes.Background: The burden of caring for a child with type 1 diabetes can be a form of stress and damage parents’ quality of life. Resilience is a crucial psychological variable that contributes to individual health in the context of extraordinary challenges. However, no studies in paediatric diabetes have focused on the effects of parent resilience on caregiving burden and quality of life.Design: This was a descriptive cross‐sectional study with a convenience sample following the STROBE guidelines.Methods: A total of 227 parents were invited to participate during the children's routine outpatient visit. Parents completed measures of resilience, caregiver burden and quality of life. The disease characteristics of children were extracted from the electronic medical records. We performed hierarchical multiple regression and Johnson–Neyman statistical analysis to probe the moderating effect of resilience.Results: The parents reported poorer mental and physical health as compared with the general population. Caregiver burden was significantly negatively associated with parents’ quality of life, while resilience demonstrated a positive correlation with life quality. Resilience served as a moderator between caregiver burden and mental health. When parents experienced a high caregiver burden, the benefit of high resilience for better mental health was apparent.Conclusions: The present study underscores the protective role of resilience in reducing caregiving burden and improving parents’ quality of life.Relevance to clinical practice: Regular psychosocial assessment for parents of children with type 1 diabetes should be incorporated into clinical nursing practice. This study confirms that resilience is a promising intervention target for parents with heavy caregiver burden and unsatisfactory life quality.Keywords
This publication has 55 references indexed in Scilit:
- Use of the national quality registry to monitor health-related quality of life of children with type 1 diabetesJournal of Child Health Care, 2013
- Resilience among caregivers of children with chronic conditions: a concept analysisJournal of Multidisciplinary Healthcare, 2013
- Maternal depressive symptoms predict acute hospitalization among children with type 1 diabetesPediatric Diabetes, 2013
- Psychological Experience of Parents of Children With Type 1 DiabetesThe Diabetes Educator, 2012
- Alzheimer's Aggression: Influences on Caregiver Coping and ResilienceJournal of Gerontological Social Work, 2011
- From Caregiver Psychological Distress to Adolescent Glycemic Control: The Mediating Role of Perceived Burden around Diabetes ManagementJournal of Pediatric Psychology, 2010
- Impact of Caring for a Child With Cancer on Parents’ Health-Related Quality of LifeJournal of Clinical Oncology, 2008
- Correlated physical and mental health summary scores for the SF-36 and SF-12 Health Survey, V.1Health and Quality of Life Outcomes, 2007
- The factor structure of the Burden Assessment Scale and the perceived burden of caregivers for individuals with severe mental disordersScandinavian Journal of Caring Sciences, 2004
- Relatives of the Impaired Elderly: Correlates of Feelings of BurdenThe Gerontologist, 1980