School-Partnered Collaborative Care (SPACE) for Pediatric Type 1 Diabetes: Development and Usability Study of a Virtual Intervention With Multisystem Community Partners (Preprint)
Preprint
- 9 July 2024
- preprint
- Published by JMIR Publications Inc. in JMIR Preprints
Abstract
BACKGROUND School-partnered interventions may improve health outcomes for children with type 1 diabetes, though there is limited evidence to support their effectiveness and sustainability. Family, school, or health system factors may interfere with intervention usability and implementation. OBJECTIVE To identify and address potential implementation barriers during intervention development, we combined methods in user-centered design and implementation science to adapt an evidence-based psychosocial intervention, the collaborative care model, to a virtual school-partnered collaborative care (SPACE) model for type 1 diabetes between schools and diabetes medical teams. METHODS We recruited patient, family, school, and health system partners (n=20) to cocreate SPACE through iterative, web-based design sessions using a digital whiteboard (phase 1). User-centered design methods included independent and group activities for idea generation, visual voting, and structured critique of the evolving SPACE prototype. In phase 2, the prototype was evaluated with the usability evaluation for evidence-based psychosocial interventions methods. School nurses reviewed the prototype and tasks in cognitive walkthroughs and completed the Intervention Usability Scale (IUS). Two members of the research team independently identified and prioritized (1-3 rating) discrete usability concerns. We evaluated the relationship between prioritization and the percentage of nurses reporting each usability issue with Spearman correlation. Differences in IUS scores by school nurse characteristics were assessed with ANOVA. RESULTS In the design phase, the partners generated over 90 unique ideas for SPACE, prioritizing elements pertaining to intervention adaptability, team-based communication, and multidimensional outcome tracking. Following three iterations of prototype development, cognitive walkthroughs were completed with 10 school nurses (n=10, 100% female; mean age 48.5, SD 9.5 years) representing different districts and years of experience. Nurses identified 16 discrete usability issues (each reported by 10%-60% of participants). Two issues receiving the highest priority (3.0): ability to access a virtual platform (n=3, 30% of participants) and data-sharing mechanisms between nurses and providers (n=6, 60% of participants). There was a moderate correlation between priority rating and the percentage of nurses reporting each issue (ρ=0.63; P=.01). Average IUS ratings (77.8, SD 11.1; 100-point scale) indicated appropriate usability. There was no difference in IUS ratings by school nurse experience (P=.54), student caseload (P=.12), number of schools covered (P=.90), or prior experience with type 1 diabetes (P=.83), suggesting that other factors may influence usability. The design team recommended strategies for SPACE implementation to overcome high-priority issues, including training users on videoconferencing applications, establishing secure forms for school data reporting, and sharing glucose data in real-time during SPACE meetings. CONCLUSIONS Cross-sector interventions are complex, and perceived usability is a potential barrier to implementation. Using web-based cocreation methods with community partners promoted high-quality intervention design that is aligned with end-user priorities. Quantitative and qualitative assessments indicated appropriate degree of usability to move forward with pilot-testing.Keywords
All Related Versions
- Published version: JMIR Diabetes, 10 (1), e64096.
This publication has 50 references indexed in Scilit:
- Cyber School Is a Marker of Youth with High-Risk DiabetesThe Journal of Pediatrics, 2021
- Human-Centered Design and Trust in MedicineJAMA, 2020
- School-based self-management interventions for asthma in children and adolescents: a mixed methods systematic reviewCochrane Database of Systematic Reviews, 2019
- Core Functions and Forms of Complex Health Interventions: a Patient-Centered Medical Home IllustrationJournal of General Internal Medicine, 2019
- Peer Coaching Interventions for Parents of Children with Type 1 DiabetesCurrent Diabetes Reports, 2017
- Integrated Medical-Behavioral Care Compared With Usual Primary Care for Child and Adolescent Behavioral HealthJAMA Pediatrics, 2015
- Collaborative Care for Adolescents With Depression in Primary CareJAMA, 2014
- Early Adolescent Relationship Predictors of Emerging Adult Outcomes: Youth With and Without Type 1 DiabetesAnnals of Behavioral Medicine, 2013
- School-Centered Telemedicine for Children with Type 1 Diabetes MellitusThe Journal of Pediatrics, 2009
- Targeting Blood Glucose Management in School Improves Glycemic Control in Children with Poorly Controlled Type 1 Diabetes MellitusThe Journal of Pediatrics, 2008