Measuring Disability in Patients With Cervical Dystonia According to the International Classification of Functioning, Disability and Health
- 9 March 2017
- journal article
- research article
- Published by SAGE Publications in OTJR: Occupational Therapy Journal of Research
- Vol. 37 (3) , 132-140
Abstract
Cervical Dystonia (CD) is a rare movement disorder characterized by an abnormal head position. This cross-sectional study describes the health status and severity of disability using an internationally agreed language by applying the International Classification of Functioning, Disability and Health (ICF). Two disease-specific rating scales were administered to 30 patients with CD. By linking the individual answers to the ICF model, the frequency and severity of reported impairments and restrictions were estimated using a count-based method. Results showed that patients most frequently reported impairments linked to “neuromusculoskeletal and movement-related functions” and “mental functions.” Most restrictions in activities were related to “interpersonal interactions and relations,” “major life areas,” and “community, social, and civic life.” One third of the reported impairments can be labeled as severe disability. The findings show that CD causes disability in multiple levels of a patients’ functioning in life, well beyond the cervical area.Keywords
This publication has 34 references indexed in Scilit:
- The effectiveness of physiotherapy for cervical dystonia: a systematic literature reviewJournal of Neurology, 2014
- Dystonia rating scales: Critique and recommendationsMovement Disorders, 2013
- The Toronto Western Spasmodic Torticollis Rating Scale: Reliability in neurologists and physiotherapistsParkinsonism & Related Disorders, 2012
- EFNS guidelines on diagnosis and treatment of primary dystoniasEuropean Journal of Neurology, 2010
- Quality of sleep in primary focal dystonia: a case–control studyEuropean Journal of Neurology, 2010
- The Cervical Dystonia Impact Profile (CDIP-58): Can a Rasch developed patient reported outcome measure satisfy traditional psychometric criteria?Health and Quality of Life Outcomes, 2008
- CDIP-58 can measure the impact of botulinum toxin treatment in cervical dystoniaNeurology, 2006
- ICF linking rules: an update based on lessons learnedJournal of Rehabilitation Medicine, 2005
- Association between dopamine transporter gene polymorphism and susceptibility to Parkinson's disease in JapanMovement Disorders, 2002
- A prevalence study of primary dystonia in eight European countriesJournal of Neurology, 2000