Telerehabilitation in Children and Adolescents with Cystic Fibrosis: A Scoping Review
Open Access
- 8 May 2024
- journal article
- review article
- Published by MDPI AG in Healthcare
- Vol. 12 (10) , 971
Abstract
Cystic fibrosis requires regular monitoring and intervention by healthcare teams; despite that, adherence to therapeutic measures is less than desired. The evolution of technology has allowed much of the care provided in person to be replaced by a telehealth delivery model, but studies on telerehabilitation are scarce and dispersed. This scoping review aimed to identify which domains of rehabilitation intervention are mediated by information and communication technologies and how they are developed in the provision of care to children and adolescents with cystic fibrosis. The data collection was conducted in February and June 2023, following the three steps recommended by the JBI for this type of review: (1) the search was conducted in MEDLINE, CINAHL, Scopus, JBI, and Web of Science; (2) the bibliographic references obtained from the included articles were analysed; and (3) the grey literature was checked. The eligibility criteria were children and adolescents and rehabilitation interventions mediated by information and communication technologies. The five studies included in this review were subjected to analysis, and a narrative synthesis of the results was carried out. The interventions identified included physical exercise programs (60%), management of the therapeutic regimen (40%), and symptom control (40%). The information and communication technologies were web-based platforms, video games, and telephones. The use of telerehabilitation included face-to-face meetings to ensure participants performed the exercises correctly, monitor their response to exercise, and teach them how to avoid risky situations during home workouts. In all studies, exercise sessions were supervised by the participants’ parents or caregivers.Keywords
Funding Information
- the Center for Research, Innovation, and Development in Nursing (CIDNUR, Psafe2transition_2021)
This publication has 41 references indexed in Scilit:
- Procedural anxiety among children and adolescents with cystic fibrosis and their parentsPediatric Pulmonology, 2023
- The effectiveness of exercise interventions to increase physical activity in Cystic Fibrosis: A systematic reviewJournal of Cystic Fibrosis, 2022
- The effect of telerehabilitation on quality of life, anxiety, and depression in children with cystic fibrosis and caregivers: A single‐blind randomized trialPediatric Pulmonology, 2022
- Telemedicine in cystic fibrosisJournal of Clinical & Translational Endocrinology, 2021
- Patient and family perceptions of telehealth as part of the cystic fibrosis care model during COVID-19Journal of Cystic Fibrosis, 2021
- Evaluation of the exercise intensity generated by active video gaming in patients with cystic fibrosis and healthy individualsJournal of Cystic Fibrosis, 2020
- Antibiotic strategies for eradicating Pseudomonas aeruginosa in people with cystic fibrosis2014
- Developmental and Psychosocial Issues in Cystic FibrosisChild and Adolescent Psychiatric Clinics of North America, 2010
- Early referral to cystic fibrosis specialist centre impacts on respiratory outcomeJournal of Cystic Fibrosis, 2009
- Physical training for cystic fibrosis2002