Sudden unexpected death in epilepsy (SUDEP): a pilot study on truth telling among Italian epileptologists

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Abstract
Sudden unexpected death in epilepsy (SUDEP) is a syndrome where a person with epilepsy dies suddenly and no other cause of death is found. The question of informing patients and their families about SUDEP remains a problematic issue. The aim of this study is to explore whether Italian physicians interested in epilepsy believe that they should discuss SUDEP with patients and/or their families. A total of 315 questionnaire were distributed, of which 195 (61.9%) were returned. Seventeen respondents (8.76%) discussed SUDEP with all of their patients, 38 (19.59%) with the majority of patients, 120 (61.85%) with very few of their patients and 15 (7.73%) with none of their patients. No statistical differences among groups were found for gender, professional age (≤10 years; ≥11 years≤20 years; ≥21 years≤30 years; ≥31 years) and medical specialty (neurologists vs. others). Open questions offered insights into the physicians’ problem of managing the negative emotions of patients/family and why the physicians decided to give information.

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