What Patients With Idiopathic Pulmonary Fibrosis and Caregivers Want: Filling the Gaps With Patient Reported Outcomes and Experience Measures

This publication has 65 references indexed in Scilit:

• Listening to the unmet needs of Europeans with COPD
  Breathe, 2013
• A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting
  BMC Health Services Research, 2013
• The UCSD shortness of breath questionnaire has longitudinal construct validity in idiopathic pulmonary fibrosis
  Respiratory Medicine, 2012
• Living with idiopathic pulmonary fibrosis
  Chronic Respiratory Disease, 2011
• An Official ATS/ERS/JRS/ALAT Statement: Idiopathic Pulmonary Fibrosis: Evidence-based Guidelines for Diagnosis and Management
  American Journal of Respiratory and Critical Care Medicine, 2011
• Development and validity testing of an IPF-specific version of the St George's Respiratory Questionnaire
  Thorax, 2010
• Patient‐reported outcome measures in the NHS: new methods for analysing and reporting EQ‐5D data
  Health Economics, 2010
• Patient-Centered Outcomes Research Institute: The Intersection of Science and Health Care
  Science Translational Medicine, 2010
• Development of a symptom specific health status measure for patients with chronic cough: Leicester Cough Questionnaire (LCQ)
  Thorax, 2003
• Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease
  Thorax, 1999