Experiences of Sexual and Gender Minorities Caring for Adults with Non-AIDS-Related Chronic Illnesses
Authors:
- Karla T. WashingtonKWKarla T. Washington
- Jane McElroyJMJane McElroy
- David AlbrightDADavid Albright
- Debra Parker OliverDODebra Parker Oliver
- Alexandria LewisALAlexandria Lewis
- Susan MeadowsSMSusan Meadows
- Susan ElliottSESusan Elliott
- 23 January 2015
- journal article
- research article
- Published by Oxford University Press (OUP) in Social Work Research
- Vol. 39 (2) , 71-81
Abstract
A number of marginalized communities receive inadequate attention in the extensive body of existing research on informal caregivers; this is particularly true of the sexual and gender minority (SGM) community. This article features a review of the evidence regarding the experiences of SGMs involved in the informal care of chronically ill friends or family members and examines the specific research strategies that have been involved in developing knowledge in this area. The review found that the SGM caregiving experience is characterized by experienced and anticipated sexual and gender prejudice within health and social services systems, involvement of families of choice, and the invisibility of the needs of SGM caregivers as a community and as individuals. Existing research in this area, which is largely qualitative, provides rich description of caregiver experiences; however, the evidence base would be strengthened by research including a more diverse range of methods, particularly studies aimed at generating results generalizable to the broader SGM community.Keywords
This publication has 26 references indexed in Scilit:
- Gay and lesbian carers: ageing in the shadow of dementiaAgeing and Society, 2011
- Exploring Queer Consciousness Among Social WorkersJournal of Gay & Lesbian Social Services, 2011
- Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison.Psychology and Aging, 2011
- Feeding the Hand that Bit You: Lesbian Daughters at Mid-Life Negotiating Parental CaretakingJournal of Lesbian Studies, 2008
- Caregiving Experiences Among American Indian Two-Spirit Men and WomenJournal of Gay & Lesbian Social Services, 2007
- We Cannot Go It AloneJournal of Gay & Lesbian Social Services, 2007
- Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence.Psychological Bulletin, 2003
- Informal Caregivers of Persons with HIV/AIDS: A Review and AnalysisJournal of the Association of Nurses in AIDS Care, 2003
- Preliminary Study of Caregiving and Post-Caregiving Experiences of Older Gay Men and LesbiansJournal of Gay & Lesbian Social Services, 2001
- A Feminist Model of Family Care: Practice and Policy DirectionsJournal of Women & Aging, 1999