Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations
Authors:
- Alice GarroodAlice Garrood
- Gretchen BjornstadGretchen Bjornstad
- Aleksandra BorekAleksandra Borek
- Annette GillettAGAnnette Gillett
- Jenny LloydJenny Lloyd
- Sarah BrandSarah Brand
- Mark TarrantMark Tarrant
- Susan BallSusan Ball
- Annie HawtonAnnie Hawton
- Annabel McDonaldAMAnnabel McDonald
- Mary FredlundMary Fredlund
- Fleur BoyleFBFleur Boyle
Open Access
- 4 July 2023
- journal article
- research article
- Published by Wiley in Health Expectations
- Vol. 26 (5) , 2050-2063
Abstract
Background: Parent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer‐led group‐based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the United Kingdom. Facilitator Training and Delivery Manuals were modified for online delivery using Zoom due to COVID‐19.Methods: The study methodology utilised the Replicating Effective Programs framework. A series of stakeholder workshops informed the development of the Implementation Logic Model and an Implementation Package. After delivering the programme, delivery partner organisations and facilitators participated in a workshop to discuss experiences of implementing the programme. A wider group of stakeholders, including commissioners, Parent Carer Forums and charity organisations representatives and researchers subsequently met to consider the sustainability and potential barriers to delivering the programme outside the research context.Results: This study explored implementation by two delivery partner organisations in the United Kingdom that were able to recruit facilitators, who we trained, and they recruited participants and delivered the programme to parent carers in different localities using Zoom. The co‐created Implementation Logic Model and Implementation Package were subsequently refined to enable the further roll‐out of the programme with other delivery partner organisations.Conclusions: This study provides insight and understanding of how the HPC programme can be implemented sustainably outside of the research context. Further research will evaluate the effectiveness of the programme and refine the implementation processes.Patient and Public Contribution: Parent carers, delivery partner organisation staff and service commissioners were consulted on the design, delivery and reporting of the research.Keywords
Funding Information
- Economic and Social Research Council (ES/T501906/1)
- National Lottery Community Fund (20136900)
This publication has 38 references indexed in Scilit:
- The Behavior Change Technique Taxonomy (v1) of 93 Hierarchically Clustered Techniques: Building an International Consensus for the Reporting of Behavior Change InterventionsAnnals of Behavioral Medicine, 2013
- Moving from efficacy to effectiveness trials in prevention researchBehaviour Research and Therapy, 2011
- Health Among Caregivers of Children With Health Problems: Findings From a Canadian Population-Based StudyAmerican Journal of Public Health, 2009
- Implementing evidence-based interventions in health care: application of the replicating effective programs frameworkImplementation Science, 2007
- The health of caregivers for children with disabilities: caregiver perspectivesChild: Care, Health and Development, 2006
- Psychological well‐being among mothers of children with cerebral palsyEarly Child Development and Care, 2006
- Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disabilityJournal of Intellectual & Developmental Disability, 2006
- The Health of Primary Caregivers of Children With Cerebral Palsy: How Does It Compare With That of Other Canadian Caregivers?Pediatrics, 2004
- Approach to Imaging the Patient With Neck PainJournal of Neuroimaging, 2003
- Efficacy and effectiveness trials (and other phases of research) in the development of health promotion programsPreventive Medicine, 1986