Overvaluing individual consent ignores risks to tribal participants
- 15 July 2019
- journal article
- editorial
- Published by Springer Nature in Nature Reviews Genetics
- Vol. 20 (9) , 497-498
Abstract
Genomic studies often rely on individual-based consent approaches for tribal members residing outside of their communities. This consent model fails to acknowledge the risks to small groups such as tribes, which can implicate the community as a whole. Genomic studies often rely on individual-based consent approaches for tribal members residing outside of their communities. Tsosie et al. argue that this consent model fails to acknowledge the risks to small groups such as tribes, which can implicate the community as a whole.Keywords
Funding Information
- National Human Genome Research Institute (RM1HG009042-02)
This publication has 3 references indexed in Scilit:
- Million-person U.S. study of genes and health stumbles over including Native American groupsScience, 2019
- A framework for enhancing ethical genomic research with Indigenous communitiesNature Communications, 2018
- From “Personalized” to “Precision” Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic MedicineHastings Center Report, 2016