Claudia Pagliari
Current Organizations / Institutes
The organizations/institutes from the scholar's latest article
Previous Organizations / Institutes
The organizations / institutes from the scholar's other articles in the past ten years
Research Subjects
Claudia Pagliari has a total of 352 co-authors. Here are the top co-authors by number of shared publications:
- Aziz Sheikh
Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK
26 shared publications - Brian McKinstry
University of Edinburgh, Usher Institute, Edinburgh
15 shared publications - Janet Hanley
Edinburgh Napier University, School of Health and Social Science, Sighthill Campus, Edinburgh EH11 4BN
12 shared publications - Aizhan Tursunbayeva
University of Naples Parthenope
9 shared publications - Josip Car
King’s Population Health Institute, King’s College London, London, UK
9 shared publications - Susannah McLean
Allergy and Respiratory Research and eHealth Research Groups, Centre for Population Health Sciences, The University of Edinburgh, Edinburgh, UK
7 shared publications
Latest Publications
- Open Access
- 25 April 2023
- Published by JMIR Publications Inc. in JMIR Preprints
Suicide Prediction from Social Media Data- Systemic Review Study (Preprint)
BACKGROUND Timely prediction and appropriate intervention can prevent suicide. However, suicide prediction has long been a major public health challenge and researcher explored different innovative approaches to find out a cost effective and efficient prediction system that can be scaled up to reduce the burden. Social media opened new horizon of research to monitor the behavior and activities of person in different context and observe expression and interaction at their own environments. The opportunity to monitor of large number of people at their natural environment made Social Media such as Twitter, Facebook, Weibo an important area of research for suicide prediction. Several studies have been reported those used different methods to develop suicide prediction system from social media data. However, it is still unclear whether social media can predict completed suicide from social media data through a systematized literature search. OBJECTIVE This study aimed to conduct a systematic search to find out common method of suicide prediction from social media data and to what extend social media data can predict completed suicides. METHODS A systemic search was conducted in multiple databases, grey literature including conference proceeding and clinical trial register from inception to 25th July 2019 following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA)-2009 guideline. Snowball searching from the reference lists of included papers and personal communication with few potential authors were made to ensure maximum number of updated papers. Two researchers conducted the initial literature search independently following the predefined search strategies. RESULTS Of the 2955 papers screened, 15 were selected for the review which documented social media can predict suicide at individual or large population level by monitoring the frequency of posting, pattern of use of language, emotional expression on it. The social media-based suicide data corelated with regional, national or international suicide data. CONCLUSIONS Though social media-based suicide prediction documented promising result, their use in large scale suicide surveillance jeopardized by the ethical concern, quality of data and complex rapidly shifting digital ecosystem.
- 25 April 2023
- Published by JMIR Publications Inc. in JMIR Preprints
Open AccessSuicide Prediction from Social Media Data- Systemic Review Study (Preprint)
BACKGROUND Timely prediction and appropriate intervention can prevent suicide. However, suicide prediction has long been a major public health challenge and researcher explored different innovative approaches to find out a cost effective and efficient prediction system that can be scaled up to reduce the burden. Social media opened new horizon of research to monitor the behavior and activities of person in different context and observe expression and interaction at their own environments. The opportunity to monitor of large number of people at their natural environment made Social Media such as Twitter, Facebook, Weibo an important area of research for suicide prediction. Several studies have been reported those used different methods to develop suicide prediction system from social media data. However, it is still unclear whether social media can predict completed suicide from social media data through a systematized literature search. OBJECTIVE This study aimed to conduct a systematic search to find out common method of suicide prediction from social media data and to what extend social media data can predict completed suicides. METHODS A systemic search was conducted in multiple databases, grey literature including conference proceeding and clinical trial register from inception to 25th July 2019 following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA)-2009 guideline. Snowball searching from the reference lists of included papers and personal communication with few potential authors were made to ensure maximum number of updated papers. Two researchers conducted the initial literature search independently following the predefined search strategies. RESULTS Of the 2955 papers screened, 15 were selected for the review which documented social media can predict suicide at individual or large population level by monitoring the frequency of posting, pattern of use of language, emotional expression on it. The social media-based suicide data corelated with regional, national or international suicide data. CONCLUSIONS Though social media-based suicide prediction documented promising result, their use in large scale suicide surveillance jeopardized by the ethical concern, quality of data and complex rapidly shifting digital ecosystem.
- Open Access
- 1 February 2023
- Published by JMIR Publications Inc. in JMIR Formative Research
- Vol. 7 (1) , e43557
A Digital Health Intervention for Concussion: Development and Clinical Feasibility Study
Background: Concussion is a common condition that can lead to a constellation of symptoms that affect quality of life, social integration, and return to work. There are several evidence-based behavioral and psychological interventions that have been found to improve postconcussion symptom burden. However, these are not routinely delivered, and individuals receive limited support during their concussion recovery. Objective: This study aimed to develop and test the feasibility of a digital health intervention using a systematic evidence-, theory-, and person-based approach. Methods: This was a mixed methodology study involving a scoping review (n=21), behavioral analysis, and logic model to inform the intervention design and content. During development, the intervention was optimized with feedback from individuals who had experienced concussions (n=12) and health care professionals (n=11). The intervention was then offered to patients presenting to the emergency department with a concussion (n=50). Participants used the intervention freely and input symptom data as part of the program. A number of outcome measures were obtained, including participant engagement with the intervention, postconcussion symptom burden, and attitudes toward the intervention. A selection of participants (n=15) took part in in-depth qualitative interviews to understand their attitudes toward the intervention and how to improve it. Results: Engagement with the intervention functionality was 90% (45/50) for the symptom diary, 62% (31/50) for sleep time setting, 56% (28/50) for the alcohol tracker, 48% (24/50) for exercise day setting, 34% (17/50) for the thought diary, and 32% (16/50) for the goal setter. Metrics indicated high levels of early engagement that trailed off throughout the course of the intervention, with an average daily completion rate of the symptom diary of 28.23% (494/1750). A quarter of the study participants (13/50, 26%) were classified as high engagers who interacted with all the functionalities within the intervention. Quantitative and qualitative feedback indicated a high level of usability and positive perception of the intervention. Daily symptom diaries (n=494) demonstrated a wide variation in individual participant symptom burden but a decline in average burden over time. For participants with Rivermead scores on completion of HeadOn, there was a strong positive correlation (r=0.86; P<.001) between their average daily HeadOn symptom diary score and their end-of-program Rivermead score. Insights from the interviews were then fed back into development to optimize the intervention and facilitate engagement. Conclusions: Using this systematic approach, we developed a digital health intervention for individuals who have experienced a concussion that is designed to facilitate positive behavior change. Symptom data input as part of the intervention provided insights into postconcussion symptom burden and recovery trajectories. Trial Registration: ClinicalTrials.gov NCT05069948; https://clinicaltrials.gov/ct2/show/NCT05069948
- 1 February 2023
- Published by JMIR Publications Inc. in JMIR Formative Research
- Vol. 7 (1) , e43557
Open AccessA Digital Health Intervention for Concussion: Development and Clinical Feasibility Study
Background: Concussion is a common condition that can lead to a constellation of symptoms that affect quality of life, social integration, and return to work. There are several evidence-based behavioral and psychological interventions that have been found to improve postconcussion symptom burden. However, these are not routinely delivered, and individuals receive limited support during their concussion recovery. Objective: This study aimed to develop and test the feasibility of a digital health intervention using a systematic evidence-, theory-, and person-based approach. Methods: This was a mixed methodology study involving a scoping review (n=21), behavioral analysis, and logic model to inform the intervention design and content. During development, the intervention was optimized with feedback from individuals who had experienced concussions (n=12) and health care professionals (n=11). The intervention was then offered to patients presenting to the emergency department with a concussion (n=50). Participants used the intervention freely and input symptom data as part of the program. A number of outcome measures were obtained, including participant engagement with the intervention, postconcussion symptom burden, and attitudes toward the intervention. A selection of participants (n=15) took part in in-depth qualitative interviews to understand their attitudes toward the intervention and how to improve it. Results: Engagement with the intervention functionality was 90% (45/50) for the symptom diary, 62% (31/50) for sleep time setting, 56% (28/50) for the alcohol tracker, 48% (24/50) for exercise day setting, 34% (17/50) for the thought diary, and 32% (16/50) for the goal setter. Metrics indicated high levels of early engagement that trailed off throughout the course of the intervention, with an average daily completion rate of the symptom diary of 28.23% (494/1750). A quarter of the study participants (13/50, 26%) were classified as high engagers who interacted with all the functionalities within the intervention. Quantitative and qualitative feedback indicated a high level of usability and positive perception of the intervention. Daily symptom diaries (n=494) demonstrated a wide variation in individual participant symptom burden but a decline in average burden over time. For participants with Rivermead scores on completion of HeadOn, there was a strong positive correlation (r=0.86; P<.001) between their average daily HeadOn symptom diary score and their end-of-program Rivermead score. Insights from the interviews were then fed back into development to optimize the intervention and facilitate engagement. Conclusions: Using this systematic approach, we developed a digital health intervention for individuals who have experienced a concussion that is designed to facilitate positive behavior change. Symptom data input as part of the intervention provided insights into postconcussion symptom burden and recovery trajectories. Trial Registration: ClinicalTrials.gov NCT05069948; https://clinicaltrials.gov/ct2/show/NCT05069948
- 1 February 2023
- Published by Springer Nature
- p. 333-357
COVID-19 “Passports” and the Safe Return to Work: Consideration for HR Professionals on How to Navigate This New Responsibility
- 1 February 2023
- Published by Springer Nature
- p. 333-357
COVID-19 “Passports” and the Safe Return to Work: Consideration for HR Professionals on How to Navigate This New Responsibility
- Open Access
- 1 January 2023
- Published by Oxford University Press (OUP) in Oxford Open Digital Health
- Vol. 1
The Covid-19 app that lasted two weeks: how technology may embody controversial public policies for health care and why we should worry about it
This paper describes the case of a Brazilian government app (TrateCov) that was deployed for only 2 weeks during the emergence of the SARS-CoV-2 Gamma variant. TrateCov was intended as a decision support tool to assist health care professionals with the diagnosis and treatment of COVID-19. After the tool was inadvertently released on a public Web site, it became accessible to anyone with an Internet connection, raising the risk of inappropriate self-management. Moreover, experts and journalists quickly spotted that almost all symptoms entered into the app resulted in a diagnosis of COVID-19, along with a recommendation to use the same ‘Covid kit’ of unproven drugs favored by leading politicians, and in the same doses for adults, children, and pregnant women. The institutional and social backlash was immediate, forcing the Brazilian Ministry of Health to take TrateCov offline. The case illustrates the potential for weak evidence and ideological bias to infiltrate digital health technologies, creating risks for patient safety and diversion of resources, thus emphasizing the importance of good governance at all stages of the innovation lifecycle. The speed of public health crises presents particular challenges for managing this phenomenon, calling for anticipatory steps to avoid such risk as part of responsible pandemic prevention strategies
- 1 January 2023
- Published by Oxford University Press (OUP) in Oxford Open Digital Health
- Vol. 1
Open AccessThe Covid-19 app that lasted two weeks: how technology may embody controversial public policies for health care and why we should worry about it
This paper describes the case of a Brazilian government app (TrateCov) that was deployed for only 2 weeks during the emergence of the SARS-CoV-2 Gamma variant. TrateCov was intended as a decision support tool to assist health care professionals with the diagnosis and treatment of COVID-19. After the tool was inadvertently released on a public Web site, it became accessible to anyone with an Internet connection, raising the risk of inappropriate self-management. Moreover, experts and journalists quickly spotted that almost all symptoms entered into the app resulted in a diagnosis of COVID-19, along with a recommendation to use the same ‘Covid kit’ of unproven drugs favored by leading politicians, and in the same doses for adults, children, and pregnant women. The institutional and social backlash was immediate, forcing the Brazilian Ministry of Health to take TrateCov offline. The case illustrates the potential for weak evidence and ideological bias to infiltrate digital health technologies, creating risks for patient safety and diversion of resources, thus emphasizing the importance of good governance at all stages of the innovation lifecycle. The speed of public health crises presents particular challenges for managing this phenomenon, calling for anticipatory steps to avoid such risk as part of responsible pandemic prevention strategies
- Open Access
- 17 May 2022
- Published by JMIR Publications Inc. in JMIR Research Protocols
- Vol. 11 (5) , e34013
Exploring the Equity Impact of Current Digital Health Design Practices: Protocol for a Scoping Review
Background: The field of digital health has grown rapidly in part due to digital health tools’ potential to reduce health inequities. However, such potential has not always been realized. The design approaches used in digital health are one of the known aspects that have an impact on health equity. Objective: The aim of our scoping review will be to understand how design approaches in digital health have an impact on health equity. Methods: A scoping review of studies that describe how design practices for digital health have an impact on health equity will be carried out. The scoping review will follow the methodologies laid out by Arksey and O’Malley, the Joanna Briggs Institute, and the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist. The PubMed, Embase, Web of Science, and ACM Digital Library databases will be searched for peer-reviewed papers. The ProQuest Dissertations and Theses and Global Index Medicus databases will be searched for gray literature. The results will be screened against our inclusion and exclusion criteria. Subsequently, the data extracted from the included studies will be analyzed. Results: As of March 2022, a preliminary search of the peer-reviewed databases has yielded over 4900 studies, and more are anticipated when gray literature databases are searched. We expect that after duplicates are removed and screening is completed, a much smaller number of studies will meet all of our inclusion criteria. Conclusions: Although there has been much discussion about the importance of design for lowering barriers to digital health participation, the evidence base demonstrating its impacts on health equity is less obvious. We hope that our findings will contribute to a better understanding of the impact that design in digital health has on health equity and that these findings will translate into action that leads to stronger, more equitable health care systems.
- 17 May 2022
- Published by JMIR Publications Inc. in JMIR Research Protocols
- Vol. 11 (5) , e34013
Open AccessExploring the Equity Impact of Current Digital Health Design Practices: Protocol for a Scoping Review
Background: The field of digital health has grown rapidly in part due to digital health tools’ potential to reduce health inequities. However, such potential has not always been realized. The design approaches used in digital health are one of the known aspects that have an impact on health equity. Objective: The aim of our scoping review will be to understand how design approaches in digital health have an impact on health equity. Methods: A scoping review of studies that describe how design practices for digital health have an impact on health equity will be carried out. The scoping review will follow the methodologies laid out by Arksey and O’Malley, the Joanna Briggs Institute, and the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist. The PubMed, Embase, Web of Science, and ACM Digital Library databases will be searched for peer-reviewed papers. The ProQuest Dissertations and Theses and Global Index Medicus databases will be searched for gray literature. The results will be screened against our inclusion and exclusion criteria. Subsequently, the data extracted from the included studies will be analyzed. Results: As of March 2022, a preliminary search of the peer-reviewed databases has yielded over 4900 studies, and more are anticipated when gray literature databases are searched. We expect that after duplicates are removed and screening is completed, a much smaller number of studies will meet all of our inclusion criteria. Conclusions: Although there has been much discussion about the importance of design for lowering barriers to digital health participation, the evidence base demonstrating its impacts on health equity is less obvious. We hope that our findings will contribute to a better understanding of the impact that design in digital health has on health equity and that these findings will translate into action that leads to stronger, more equitable health care systems.
- Open Access
- 24 November 2021
- Published by Taylor & Francis in International Review of Law, Computers & Technology
- Vol. 36 (2) , 251-285
Legal contestation of artificial intelligence-related decision-making in the United Kingdom: reflections for policy
This paper considers legal contestation in the UK as a source of useful reflections for AI policy. The government has published a ‘National AI Strategy’, but it is unclear how effective this will be given doubts about levels of public trust. One key concern is the UK’s apparent ‘side-lining’ of the law. A series of events were convened to investigate critical legal perspectives on the issues, culminating in an expert workshop addressing five sectors. Participants discussed AI in the context of wider trends towards automated decision-making (ADM). A recent proliferation in legal actions is expected to continue. The discussions illuminated the various ways in which individual examples connect systematically to developments in governance and broader ‘AI-related decision-making’, particularly due to chronic problems with transparency and awareness. This provides a fresh and current insight into the perspectives of key groups advancing criticisms relevant to policy in this area. Policymakers’ neglect of the law and legal processes is contributing to quality issues with recent practical ADM implementation in the UK. Strong signals are now required to switch back from the vicious cycle of increasing mistrust to an approach capable of generating public trust. Suggestions are summarised for consideration by policymakers.
- 24 November 2021
- Published by Taylor & Francis in International Review of Law, Computers & Technology
- Vol. 36 (2) , 251-285
Open AccessLegal contestation of artificial intelligence-related decision-making in the United Kingdom: reflections for policy
This paper considers legal contestation in the UK as a source of useful reflections for AI policy. The government has published a ‘National AI Strategy’, but it is unclear how effective this will be given doubts about levels of public trust. One key concern is the UK’s apparent ‘side-lining’ of the law. A series of events were convened to investigate critical legal perspectives on the issues, culminating in an expert workshop addressing five sectors. Participants discussed AI in the context of wider trends towards automated decision-making (ADM). A recent proliferation in legal actions is expected to continue. The discussions illuminated the various ways in which individual examples connect systematically to developments in governance and broader ‘AI-related decision-making’, particularly due to chronic problems with transparency and awareness. This provides a fresh and current insight into the perspectives of key groups advancing criticisms relevant to policy in this area. Policymakers’ neglect of the law and legal processes is contributing to quality issues with recent practical ADM implementation in the UK. Strong signals are now required to switch back from the vicious cycle of increasing mistrust to an approach capable of generating public trust. Suggestions are summarised for consideration by policymakers.
- Top Cited PapersOpen Access
- 12 November 2021
- Published by Springer Nature in npj Digital Medicine
- Vol. 4 (1) , 1-14
Mobile devices and wearable technology for measuring patient outcomes after surgery: a systematic review
Complications following surgery are common and frequently occur the following discharge. Mobile and wearable digital health interventions (DHI) provide an opportunity to monitor and support patients during their postoperative recovery. Lack of high-quality evidence is often cited as a barrier to DHI implementation. This review captures and appraises the current use, evidence base and reporting quality of mobile and wearable DHI following surgery. Keyword searches were performed within Embase, Cochrane Library, Web of Science and WHO Global Index Medicus databases, together with clinical trial registries and Google scholar. Studies involving patients undergoing any surgery requiring skin incision where postoperative outcomes were measured using a DHI following hospital discharge were included, with DHI defined as mobile and wireless technologies for health to improve health system efficiency and health outcomes. Methodological reporting quality was determined using the validated mobile health evidence reporting and assessment (mERA) guidelines. Bias was assessed using the Cochrane Collaboration tool for randomised studies or MINORS depending on study type. Overall, 6969 articles were screened, with 44 articles included. The majority (n = 34) described small prospective study designs, with a high risk of bias demonstrated. Reporting standards were suboptimal across all domains, particularly in relation to data security, prior patient engagement and cost analysis. Despite the potential of DHI to improve postoperative patient care, current progress is severely restricted by limitations in methodological reporting. There is an urgent need to improve reporting for DHI following surgery to identify patient benefit, promote reproducibility and encourage sustainability.
- 12 November 2021
- Published by Springer Nature in npj Digital Medicine
- Vol. 4 (1) , 1-14
Top Cited PapersOpen AccessMobile devices and wearable technology for measuring patient outcomes after surgery: a systematic review
Complications following surgery are common and frequently occur the following discharge. Mobile and wearable digital health interventions (DHI) provide an opportunity to monitor and support patients during their postoperative recovery. Lack of high-quality evidence is often cited as a barrier to DHI implementation. This review captures and appraises the current use, evidence base and reporting quality of mobile and wearable DHI following surgery. Keyword searches were performed within Embase, Cochrane Library, Web of Science and WHO Global Index Medicus databases, together with clinical trial registries and Google scholar. Studies involving patients undergoing any surgery requiring skin incision where postoperative outcomes were measured using a DHI following hospital discharge were included, with DHI defined as mobile and wireless technologies for health to improve health system efficiency and health outcomes. Methodological reporting quality was determined using the validated mobile health evidence reporting and assessment (mERA) guidelines. Bias was assessed using the Cochrane Collaboration tool for randomised studies or MINORS depending on study type. Overall, 6969 articles were screened, with 44 articles included. The majority (n = 34) described small prospective study designs, with a high risk of bias demonstrated. Reporting standards were suboptimal across all domains, particularly in relation to data security, prior patient engagement and cost analysis. Despite the potential of DHI to improve postoperative patient care, current progress is severely restricted by limitations in methodological reporting. There is an urgent need to improve reporting for DHI following surgery to identify patient benefit, promote reproducibility and encourage sustainability.
- Open Access
- 6 October 2021
- Published by JMIR Publications Inc. in JMIR Preprints
Exploring the Equity Impact of Current Digital Health Design Practices: Protocol for a Scoping Review (Preprint)
BACKGROUND The field of digital health has grown rapidly in part due to digital health tools’ potential to reduce health inequities. However, such potential has not always been realized. The design approaches used in digital health are one of the known aspects that have an impact on health equity. OBJECTIVE The aim of our scoping review will be to understand how design approaches in digital health have an impact on health equity. METHODS A scoping review of studies that describe how design practices for digital health have an impact on health equity will be carried out. The scoping review will follow the methodologies laid out by Arksey and O’Malley, the Joanna Briggs Institute, and the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist. The PubMed, Embase, Web of Science, and ACM Digital Library databases will be searched for peer-reviewed papers. The ProQuest Dissertations and Theses and Global Index Medicus databases will be searched for gray literature. The results will be screened against our inclusion and exclusion criteria. Subsequently, the data extracted from the included studies will be analyzed. RESULTS As of March 2022, a preliminary search of the peer-reviewed databases has yielded over 4900 studies, and more are anticipated when gray literature databases are searched. We expect that after duplicates are removed and screening is completed, a much smaller number of studies will meet all of our inclusion criteria. CONCLUSIONS Although there has been much discussion about the importance of design for lowering barriers to digital health participation, the evidence base demonstrating its impacts on health equity is less obvious. We hope that our findings will contribute to a better understanding of the impact that design in digital health has on health equity and that these findings will translate into action that leads to stronger, more equitable health care systems.
- 6 October 2021
- Published by JMIR Publications Inc. in JMIR Preprints
Open AccessExploring the Equity Impact of Current Digital Health Design Practices: Protocol for a Scoping Review (Preprint)
BACKGROUND The field of digital health has grown rapidly in part due to digital health tools’ potential to reduce health inequities. However, such potential has not always been realized. The design approaches used in digital health are one of the known aspects that have an impact on health equity. OBJECTIVE The aim of our scoping review will be to understand how design approaches in digital health have an impact on health equity. METHODS A scoping review of studies that describe how design practices for digital health have an impact on health equity will be carried out. The scoping review will follow the methodologies laid out by Arksey and O’Malley, the Joanna Briggs Institute, and the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist. The PubMed, Embase, Web of Science, and ACM Digital Library databases will be searched for peer-reviewed papers. The ProQuest Dissertations and Theses and Global Index Medicus databases will be searched for gray literature. The results will be screened against our inclusion and exclusion criteria. Subsequently, the data extracted from the included studies will be analyzed. RESULTS As of March 2022, a preliminary search of the peer-reviewed databases has yielded over 4900 studies, and more are anticipated when gray literature databases are searched. We expect that after duplicates are removed and screening is completed, a much smaller number of studies will meet all of our inclusion criteria. CONCLUSIONS Although there has been much discussion about the importance of design for lowering barriers to digital health participation, the evidence base demonstrating its impacts on health equity is less obvious. We hope that our findings will contribute to a better understanding of the impact that design in digital health has on health equity and that these findings will translate into action that leads to stronger, more equitable health care systems.
- Top Cited PapersOpen Access
- 15 September 2021
- Published by JMIR Publications Inc. in JMIR Infodemiology
- Vol. 1 (1) , e30979
A Public Health Research Agenda for Managing Infodemics: Methods and Results of the First WHO Infodemiology Conference
Background: An infodemic is an overflow of information of varying quality that surges across digital and physical environments during an acute public health event. It leads to confusion, risk-taking, and behaviors that can harm health and lead to erosion of trust in health authorities and public health responses. Owing to the global scale and high stakes of the health emergency, responding to the infodemic related to the pandemic is particularly urgent. Building on diverse research disciplines and expanding the discipline of infodemiology, more evidence-based interventions are needed to design infodemic management interventions and tools and implement them by health emergency responders. Objective: The World Health Organization organized the first global infodemiology conference, entirely online, during June and July 2020, with a follow-up process from August to October 2020, to review current multidisciplinary evidence, interventions, and practices that can be applied to the COVID-19 infodemic response. This resulted in the creation of a public health research agenda for managing infodemics. Methods: As part of the conference, a structured expert judgment synthesis method was used to formulate a public health research agenda. A total of 110 participants represented diverse scientific disciplines from over 35 countries and global public health implementing partners. The conference used a laddered discussion sprint methodology by rotating participant teams, and a managed follow-up process was used to assemble a research agenda based on the discussion and structured expert feedback. This resulted in a five-workstream frame of the research agenda for infodemic management and 166 suggested research questions. The participants then ranked the questions for feasibility and expected public health impact. The expert consensus was summarized in a public health research agenda that included a list of priority research questions. Results: The public health research agenda for infodemic management has five workstreams: (1) measuring and continuously monitoring the impact of infodemics during health emergencies; (2) detecting signals and understanding the spread and risk of infodemics; (3) responding and deploying interventions that mitigate and protect against infodemics and their harmful effects; (4) evaluating infodemic interventions and strengthening the resilience of individuals and communities to infodemics; and (5) promoting the development, adaptation, and application of interventions and toolkits for infodemic management. Each workstream identifies research questions and highlights 49 high priority research questions. Conclusions: Public health authorities need to develop, validate, implement, and adapt tools and interventions for managing infodemics in acute public health events in ways that are appropriate for their countries and contexts. Infodemiology provides a scientific foundation to make this possible. This research agenda proposes a structured framework for targeted investment for the scientific community, policy makers, implementing organizations, and other stakeholders to consider.
- 15 September 2021
- Published by JMIR Publications Inc. in JMIR Infodemiology
- Vol. 1 (1) , e30979
Top Cited PapersOpen AccessA Public Health Research Agenda for Managing Infodemics: Methods and Results of the First WHO Infodemiology Conference
Background: An infodemic is an overflow of information of varying quality that surges across digital and physical environments during an acute public health event. It leads to confusion, risk-taking, and behaviors that can harm health and lead to erosion of trust in health authorities and public health responses. Owing to the global scale and high stakes of the health emergency, responding to the infodemic related to the pandemic is particularly urgent. Building on diverse research disciplines and expanding the discipline of infodemiology, more evidence-based interventions are needed to design infodemic management interventions and tools and implement them by health emergency responders. Objective: The World Health Organization organized the first global infodemiology conference, entirely online, during June and July 2020, with a follow-up process from August to October 2020, to review current multidisciplinary evidence, interventions, and practices that can be applied to the COVID-19 infodemic response. This resulted in the creation of a public health research agenda for managing infodemics. Methods: As part of the conference, a structured expert judgment synthesis method was used to formulate a public health research agenda. A total of 110 participants represented diverse scientific disciplines from over 35 countries and global public health implementing partners. The conference used a laddered discussion sprint methodology by rotating participant teams, and a managed follow-up process was used to assemble a research agenda based on the discussion and structured expert feedback. This resulted in a five-workstream frame of the research agenda for infodemic management and 166 suggested research questions. The participants then ranked the questions for feasibility and expected public health impact. The expert consensus was summarized in a public health research agenda that included a list of priority research questions. Results: The public health research agenda for infodemic management has five workstreams: (1) measuring and continuously monitoring the impact of infodemics during health emergencies; (2) detecting signals and understanding the spread and risk of infodemics; (3) responding and deploying interventions that mitigate and protect against infodemics and their harmful effects; (4) evaluating infodemic interventions and strengthening the resilience of individuals and communities to infodemics; and (5) promoting the development, adaptation, and application of interventions and toolkits for infodemic management. Each workstream identifies research questions and highlights 49 high priority research questions. Conclusions: Public health authorities need to develop, validate, implement, and adapt tools and interventions for managing infodemics in acute public health events in ways that are appropriate for their countries and contexts. Infodemiology provides a scientific foundation to make this possible. This research agenda proposes a structured framework for targeted investment for the scientific community, policy makers, implementing organizations, and other stakeholders to consider.
- Open Access
- 2 July 2021
- Published by International Society of Global Health in Journal of Global Health
- Vol. 11
Digital health and primary care: Past, pandemic and prospects
This article reflects on the breadth of digital developments seen in primary care over time, as well as the rapid and significant changes prompted by the COVID-19 crisis. Recent research and experience have shone further light on factors influencing the implementation and usefulness of these approaches, as well as unresolved challenges and unintended consequences. These are considered in relation to not only digital technology and infrastructure, but also wider aspects of health systems, the nature of primary care work and culture, patient characteristics and inequalities, and ethical issues around data privacy, inclusion, empowerment, empathy and trust. Implications for the future direction and sustainability of these approaches are discussed, taking account of novel paradigms, such as artificial intelligence, and the growing capture of primary care data for secondary uses. Decision makers are encouraged to think holistically about where value is most likely to be added, or risks being taken away, when judging which innovations to carry forward. It concludes that, while responding to this public health emergency has created something of a digital ‘big bang’ for primary care, an incremental, adaptive, patient-centered strategy, focused on augmenting rather than replacing existing services, is likely to prove most fruitful in the longer term.
- 2 July 2021
- Published by International Society of Global Health in Journal of Global Health
- Vol. 11
Open AccessDigital health and primary care: Past, pandemic and prospects
This article reflects on the breadth of digital developments seen in primary care over time, as well as the rapid and significant changes prompted by the COVID-19 crisis. Recent research and experience have shone further light on factors influencing the implementation and usefulness of these approaches, as well as unresolved challenges and unintended consequences. These are considered in relation to not only digital technology and infrastructure, but also wider aspects of health systems, the nature of primary care work and culture, patient characteristics and inequalities, and ethical issues around data privacy, inclusion, empowerment, empathy and trust. Implications for the future direction and sustainability of these approaches are discussed, taking account of novel paradigms, such as artificial intelligence, and the growing capture of primary care data for secondary uses. Decision makers are encouraged to think holistically about where value is most likely to be added, or risks being taken away, when judging which innovations to carry forward. It concludes that, while responding to this public health emergency has created something of a digital ‘big bang’ for primary care, an incremental, adaptive, patient-centered strategy, focused on augmenting rather than replacing existing services, is likely to prove most fruitful in the longer term.