Johan de Jong

Background: Stroke is a major cause of disability globally, with high recurrence rates despite the implementation of secondary prevention strategies. Promoting physical activity and reducing sedentary behaviour are critical to mitigate these risks. Collaborative research approaches, including citizen science, offer promising methods for developing more effective and sustainable interventions by leveraging patient insights and lived experiences across different research stages. Objectives: This scoping review explored the application of citizen science approaches in developing interventions targeting physical activity and sedentary behaviour for people with stroke. Methods: Following Arksey and O’Malley’s framework and the PRISMA-ScR checklist, five databases were searched. We included empirical studies involving stroke patients in research on physical activity or sedentary behaviour interventions. Data was extracted on terminology, collaboration methods, and participant roles and analysed using the Participation Matrix framework. Methodological rigor was assessed using the CASP qualitative checklist. Results: Fourteen studies were included, most published after 2020 and originating from diverse countries. Terms like “co-design,” “co-creation,” and “patient and public involvement” were prevalent, but “citizen science” was not explicitly mentioned. Methods for active involvement of stroke patients included focus groups, workshops, and advisory panels. Stroke patients primarily participated as advisors or partners during intervention design, with minimal involvement in early research stages, data analysis, or dissemination. Researchers predominantly held decision-making roles. Conclusions: Citizen science in stroke research is still developing, with limited patient involvement across research phases. Expanding the depth and scope of patient involvement could enhance the relevance and long-term impact of interventions.

Citizen science has demonstrated potential to foster local changes in public health, including physical (in)activity. We used community-engaged citizen science to explore how to improve the exercise-friendliness of a Dutch neighborhood, chosen because it scored below average on important health parameters. We followed the steps of design thinking and employed the Our Voice citizen science method to find out how community members perceived exercise-friendliness in their neighborhood. Members participated in technology-enabled “discovery” walks using the multi-lingual Stanford Neighborhood Discovery Tool mobile application. Positive, negative, and dual features in the neighborhood were captured. During a researcher-facilitated process, citizen scientists analyzed their data together, leading to overarching themes reflecting resident needs and desires. These themes served as the basis for developing a walking route throughout the neighborhood. Several initial walking route prototypes were developed and tested by citizen scientists, resulting in a final route design that was realized in collaboration with local government officials. Citizen scientists were interviewed and asked about their engagement with and sense of agency throughout the research process. They reported commitment to the project and their neighborhood, and a desire to contribute to society. They also reported increased agency in contributing to neighborhood impacts. This project showed that citizen science “by the people” is a powerful way to engage people with projects in their own neighborhoods. It provided local perspectives on the neighborhood, which led to actual changes in the environment.

This scoping review aimed to systematically explore the breadth and extent of the literature regarding the relationship between contextual factors (CFs) and training load (TL) in adolescent soccer players. Further aims included comprehending potential underlying mechanisms and identifying knowledge gaps. CFs were defined as factors not part of the main training process, such as the coach–athlete relationship and educational responsibilities. PubMed, EBSCO APA PsycINFO, Web of Science, ProQuest Dissertations & Theses A&I, and SportRxiv were searched. Studies involving adolescent soccer players that investigated the CF–TL relationship and measured TL indicators were deemed eligible. Seventeen studies were included, reflecting the limited number of articles published regarding the CF–TL relationship. CFs were mostly related to match-play (N = 13) and phase of the season (N = 7). Moreover, these factors appeared to affect TL. CF related to players’ personal environment (N = 3) were underrepresented in the reviewed studies. Overall, the CF–TL relationship appears to be rarely scrutinized. A likely cause for this lack of research is the segregation of the physiological and psychological research domains, where the CF–TL relationship is often speculated upon but not measured. Therefore, a holistic approach is warranted which also investigates the effect of personal environment, such as stressful life stress events, on TL.

Athlete development depends on many factors that need to be balanced by the coach. The amount of data collected grows with the development of sensor technology. To make data-informed decisions for training prescription of their athletes, coaches could be supported by feedback through a coach dashboard. The aim of this paper is to describe the design of a coach dashboard based on scientific knowledge, user requirements, and (sensor) data to support decision making of coaches for athlete development in cyclic sports. The design process involved collaboration with coaches, embedded scientists, researchers, and IT professionals. A classic design thinking process was used to structure the research activities in five phases: empathise, define, ideate, prototype, and test phases. To understand the user requirements of coaches, a survey (n = 38), interviews (n = 8) and focus-group sessions (n = 4) were held. Design principles were adopted into mock-ups, prototypes, and the final coach dashboard. Designing a coach dashboard using the co-operative research design helped to gain deep insights into the specific user requirements of coaches in their daily training practice. Integrating these requirements, scientific knowledge, and functionalities in the final coach dashboard allows the coach to make data-informed decisions on training prescription and optimise athlete development.

The aim of this observational study was to examine the differences between training variables as intended by coaches and perceived by junior speed skaters and to explore how these relate to changes in stress and recovery. During a 4-week preparatory period, intended and perceived training intensity (RPE) and duration (min) were monitored for 2 coaches and their 23 speed skaters, respectively. The training load was calculated by multiplying RPE by duration. Changes in perceived stress and recovery were measured using RESTQ-sport questionnaires before and after 4 weeks. Results included 438 intended training sessions and 378 executed sessions of 14 speed skaters. A moderately higher intended (52:37 h) versus perceived duration (45:16 h) was found, as skaters performed fewer training sessions than anticipated (four sessions). Perceived training load was lower than intended for speed skating sessions (−532 ± 545 AU) and strength sessions (−1276 ± 530 AU) due to lower RPE scores for skating (−0.6 ± 0.7) or shorter and fewer training sessions for strength (−04:13 ± 02:06 hh:mm). All training and RESTQ-sport parameters showed large inter-individual variations. Differences between intended–perceived training variables showed large positive correlations with changes in RESTQ-sport, i.e., for the subscale’s success (r = 0.568), physical recovery (r = 0.575), self-regulation (r = 0.598), and personal accomplishment (r = 0.589). To conclude, speed skaters that approach or exceed the coach’s intended training variables demonstrated an increased perception of success, physical recovery, self-regulation, and personal accomplishment.

Sport injuries are a major reason for reduced participation and drop-out from sports and physical education. Refraining from sport participation has negative effects on mental and physical well-being, which tracks into adulthood. It is therefore important for youth to be facilitated into lifelong active participation in physical activity and sport. Despite the importance of sports injury prevention in youth, no broad scale approaches that work in real-life situations with significant positive effects exist. Sports coaches (SC) and physical educators (PE) experience current approaches exercises as not context specific, time consuming and not contributing to their training goals. This leads to poor uptake, implementation and maintenance of current sports injury prevention exercises. To overcome current barriers, the Move Healthy project develops ICT based video material of routines for and with PE and SC, which supports them to prevent sports injuries in youth. The purpose of this crucial mapping phase is to identify the wishes and needs of the end-users PE and SC regarding injury prevention. A mapping procedure was conducted to identify the wishes and needs of PE and SC regarding integration of injury prevention in their daily work. For that, focus groups, with PE from primary and secondary education and basketball and soccer coaches from 6 EU countries, were held. A total of 31 PE (primary and secondary school) and 37 sport coaches (basketball and soccer) from 6 EU countries were included. The qualitative results from SC state that injury preventive routines should focus on: sport performance, good quality of movement, dynamic combinations of existing exercises and it should be fun and challenging. PE tend to focus more on: motivation aspects, how to overcome barriers and implementation aspects. For both groups, a clear and specific explanation about the why, what and how regarding injury prevention based on principles of motor learning should be included in the approach. The results from the mapping phase will lead to guidelines, statements regarding educational concepts, content and design criteria for video material on the ICT based support platform for SC and PE. Acknowledgements This project is financially co-funded by the Erasmus+ Sport program from the European Union.

Background: The prescription of physical activity (PA) in clinical care has been advocated worldwide. This “exercise is medicine” (E=M) concept can be used to prevent, manage, and cure various lifestyle-related chronic diseases. Due to several challenges, E=M is not yet routinely implemented in clinical care. Objective: This paper describes the rationale and design of the Physicians Implement Exercise = Medicine (PIE=M) study, which aims to facilitate the implementation of E=M in hospital care. Methods: PIE=M consists of 3 interrelated work packages. First, levels and determinants of PA in different patient and healthy populations will be investigated using existing cohort data. The current implementation status, facilitators, and barriers of E=M will also be investigated using a mixed-methods approach among clinicians of participating departments from 2 diverse university medical centers (both located in a city, but one serving an urban population and one serving a more rural population). Implementation strategies will be connected to these barriers and facilitators using a systematic implementation mapping approach. Second, a generic E=M tool will be developed that will provide tailored PA prescription and referral. Requirements for this tool will be investigated among clinicians and department managers. The tool will be developed using an iterative design process in which all stakeholders reflect on the design of the E=M tool. Third, we will pilot-implement the set of implementation strategies, including the E=M tool, to test its feasibility in routine care of clinicians in these 2 university medical centers. An extensive learning process evaluation will be performed among clinicians, department managers, lifestyle coaches, and patients using a mixed-methods design based on the RE-AIM framework. Results: This project was approved and funded by the Dutch grant provider ZonMW in April 2018. The project started in September 2018 and continues until December 2020 (depending on the course of the COVID-19 crisis). All data from the first work package have been collected and analyzed and are expected to be published in 2021. Results of the second work package are described. The manuscript is expected to be published in 2021. The third work package is currently being conducted in clinical practice in 4 departments of 2 university medical hospitals among clinicians, lifestyle coaches, hospital managers, and patients. Results are expected to be published in 2021. Conclusions: The PIE=M project addresses the potential of providing patients with PA advice to prevent and manage chronic disease, improve recovery, and enable healthy ageing by developing E=M implementation strategies, including an E=M tool, in routine clinical care. The PIE=M project will result in a blueprint of implementation strategies, including an E=M screening and referral tool, which aims to improve E=M referral by clinicians to improve patients’ health, while minimizing the burden on clinicians.