Jasmine A. Manalel

Older women living with HIV are uniquely situated at multiple marginalized intersections because of their gender, age, and HIV status. However, research into how gender-based stigma (GBS) affects HIV prevention and care for older women is sparse. We conducted a scoping review to explore the relationship between GBS and HIV-related psychosocial, behavioral, and well-being outcomes among older women. Our systematic search yielded 25 articles describing 22 unique studies. We identified five main themes highlighting how GBS exists at individual, interpersonal, and societal levels to adversely affect HIV prevention and treatment among older women: (a) relationship power, safe sex practices, and intimate partner violence; (b) stigma, discrimination, and harmful stereotypes; (c) quality of care; (d) caregiving roles and responsibilities; and (e) psychological and physiological manifestations. Outstanding questions remain on best methods for measuring and conceptualizing GBS in HIV research and ways to translate research findings to public health practice.

The COVID-19 pandemic disrupted health care systems and resulted in some delays of care, challenging health care engagement among people living with HIV (PLWH). Using in-depth interviews, we explored the experiences of PLWH during the pandemic and identified barriers to and facilitators of care engagement. We recruited 40 participants from a managed-care Medicaid plan in New York City and conducted phone interviews during fall 2023. Thematic analysis identified 5 themes related to care engagement during the pandemic: (a) health care system strains led to some delays in care; (b) patient–provider connections suffered; (c) the pandemic led to personal crises and challenges to care engagement; (d) strong communication and connection reduced disruption and stress; and (e) the pandemic had a lasting effect on interpersonal connections. These findings highlight ways to help maintain care engagement among PLWH even during social and public health crises and contribute to ending the epidemic.

Adherence to antiretroviral therapy (ART) is essential for the effective management of HIV, which includes keeping the HIV viral load undetectable. This study aimed to determine whether certain ART medications are more “forgiving” of poor adherence in achieving viral suppression. We identified subgroups of ART medication usage and determined the extent to which ART adherence is associated with viral suppression across those subgroups. Data came from claims and clinical records (2017–2019) of 3,552 HIV-positive adult members of a Medicaid managed care plan. Pharmacy fill data were examined to characterize ART medications using latent class analysis (LCA), which captures the complexity of real-world ART usage (i.e., multiple medications, ART switching). LCA yielded five ART medication patterns over three years, mostly characterized by recent medications and formulations of ART, though they varied in number of tablets and in medication class. Mixed effects logistic regression models were estimated to determine whether odds of viral suppression differed by ART adherence level. After adjusting for covariates, those with at least 90% adherence (i.e., 90 to < 95%) did not significantly differ from those with 95% adherence or greater in terms of viral suppression, which corroborates existing clinical recommendations. These findings can inform provider-patient communication for people with HIV, especially those who have difficulty maintaining adherence. This includes those experiencing unstable housing, mental health conditions, or substance use.

In this chapter we consider social relations within the family, especially how families help and hinder older people as they face two common age-related challenges: (1) geographic mobility, specifically migration; and (2) chronic disease, specifically Alzheimer’s Disease and Related Dementias (ADRD) and Mild Cognitive Impairment (MCI). These issues are not new but have taken on increased importance in recent times. Reliance on family is a cultural keystone in many parts of the world. For families who are displaced, it can be the older person who provides a sense of stability. Conversely, should the older person become chronically ill destabilizing the family system, a concerted government response is necessary to ensure successful resettlement of the family. We argue that these challenges must be addressed in order to adequately prepare for ageing in the future. We provide recent empirical evidence, suggest relevant policy and outline areas where additional data are needed.

Older people have been disproportionately affected by the COVID-19 pandemic and are often portrayed as passive victims of this global health crisis. However, older adults do take responsibility for their own health and that of others in large part through social network dynamics. The purpose of this study was to understand the processes whereby older adults’ social networks shape their own health behaviors, and vice versa, in the context of COVID-19 vaccination and other mitigation efforts. Qualitative data from 77 older adults between ages 65 and 94 obtained through focus groups or individual interview participants were analyzed. Participant narratives demonstrated the reciprocal nature of social support and health behaviors and provided evidence that COVID-19-related health behaviors in this population were motivated by social support, altruism, and life experience. These findings emphasize older adults’ active role as health promoters in their families and communities, keeping themselves and their significant others safe from COVID infection. Implications for the role of older adults in community health promotion efforts are discussed.

Personal networks undergo changes in structure and composition throughout the life span, adapting to developmental transitions and changing circumstances in a dynamic way. This study examines stability and change in social convoys from childhood to adulthood and variation in trajectories of convoy characteristics by gender and race. Multilevel models for convoy structure and composition characteristics were estimated using three waves of longitudinal data spanning 23 years. The regionally representative sample included 193 children aged 8 to 12 in Wave 1 (1992) who were surveyed again in their 20s (Wave 2) and 30s (Wave 3). The Wave 1 sample comprised 52% girls, 32% Black children, and 59% White children with average maternal educational attainment of 13 years. Overall, changes in composition, proximity, and contact frequency were observed at each wave. Between Waves 1 and 2, the changes reflect age-normative trends toward network diversification typical of the transition to adulthood, whereas between Waves 2 and 3, the changes were consistent with those expected as young adults settle into stable roles. We also identified convoy characteristics that differed between men and women and between Black and White individuals, emphasizing the importance of considering personal characteristics to fully understand form and function of social relations. Social convoy trajectories early in the life span provide direction for more in-depth examinations of the implications of social ties during these critical life periods. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

Caregivers of children with rare diseases often consider caregiving to be a rewarding experience, despite high levels of burden. The present study examined associations between caregiver stress and...

Caregiving networks of individuals with Alzheimer’s disease and related dementias (ADRD) are comprised of family and friends directly involved in caregiving activities and those supporting these activities. The purpose of this study was to investigate whether caregiving-related behaviors and interactions (i.e., uplift, malfeasance, and nonfeasance), kinship tie (i.e., friend, family), and family history of ADRD were associated with caregivers’ emotional support networks. Seventy-one caregivers across 30 families provided information about 776 network members. Perceived emotional support and interactions representing uplift, malfeasance, and nonfeasance were assessed. Results indicated that uplift and friendship were associated with increased, whereas nonfeasance was associated with decreased, likelihood of perceived emotional support. Caregivers with a family history of ADRD were particularly more likely to report emotional support from friends and uplifting network members. Findings suggest the need for differential strategies based on families’ prior caregiving experience to facilitate positive and minimize negative interactions within caregiving networks.

Improving diet is a prime target for the prevention and management of chronic disease. The communal coping model suggests that families can mitigate shared risk of chronic disease through encouragement of healthful eating, eliciting preventive behaviors. Using network data from 69 Australian families across three ancestry groups (Anglo, Italian, and Asian) with varied family health histories, the present study applied social network analysis to identify patterns of intergenerational encouragement of healthful eating behavior within families, and assess whether patterns varied by family ancestry or disease density. Findings indicated variation in patterns of health encouragement by ancestry such that Asian-Australian families were most distinct from the other ancestry groups. While there was no main effect of familial disease history, it moderated the effect of Italian ancestry on intergenerational encouragement patterns. These results provide important context for future family based interventions that leverage normative patterns of intergenerational exchange of encouragement or aim to modify such patterns in an effort to improve family health. (PsycINFO Database Record (c) 2019 APA, all rights reserved).