Inger-Lise Andresen
Current Organizations / Institutes
The organizations/institutes from the scholar's latest article
Inger-Lise Andresen has a total of 5 co-authors. Here are the top co-authors by number of shared publications:
- Heidi Johansen
TRS, National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesodden, Norway
2 shared publications - Brede Dammann
Sunnaas Rehabilitation Hospital, Norway
1 shared publication - Eva E Naess
Frambu National Centre for Rare Disorders, 1404 Siggerud, Norway
1 shared publication - Kare Birger Hagen
National Resource Centre for Rehabilitation in Rheumatology, Department of Rheumatology, Diakonhjemmet Hospital, 0370 Oslo, Norway
1 shared publication - Morten Wang Fagerland
Oslo Centre for Biostatistics and Epidemiology Research Support Services Oslo University Hospital Oslo, Norway
1 shared publication
Latest Publications
- Open Access
- 1 January 2013
- Published by Springer Nature in Health and Quality of Life Outcomes
- Vol. 11 (1) , 152
Health-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two
To examine children's health-related quality of life and parents' satisfaction with life and explore the association between the two in families where a child has a rare disorder. We used a cross-sectional study design. A questionnaire was sent to parents of 439 school children (6-18 years) with congenital rare disorders. Children's health-related quality of life (HRQOL) was examined by Pediatric Quality of Life InventoryTM 4.0 (PedsQL) Norwegian version. Satisfaction with life was examined by Satisfaction with Life Scale (SWLS). The response rate was 48% (n = 209). The average age of the children was 12 years and 50% were girls. The parents scored their children with reduced physical, emotional, social and school functioning. The reductions were greatest in the physical area. Parents scored average to high on SWLS but significantly lower than the general Norwegian population. There was a positive association between parental SWLS and the children's social functioning and school functioning. Children with congenital, rare disorders often require assistance from many parts of the public service system. Caring for their physical needs should not conflict with their educational and social needs. It is important that the children's school-life is organized so that the diagnosis does not interfere with the children's education and social life more than necessary.
- 1 January 2013
- Published by Springer Nature in Health and Quality of Life Outcomes
- Vol. 11 (1) , 152
Open AccessHealth-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two
To examine children's health-related quality of life and parents' satisfaction with life and explore the association between the two in families where a child has a rare disorder. We used a cross-sectional study design. A questionnaire was sent to parents of 439 school children (6-18 years) with congenital rare disorders. Children's health-related quality of life (HRQOL) was examined by Pediatric Quality of Life InventoryTM 4.0 (PedsQL) Norwegian version. Satisfaction with life was examined by Satisfaction with Life Scale (SWLS). The response rate was 48% (n = 209). The average age of the children was 12 years and 50% were girls. The parents scored their children with reduced physical, emotional, social and school functioning. The reductions were greatest in the physical area. Parents scored average to high on SWLS but significantly lower than the general Norwegian population. There was a positive association between parental SWLS and the children's social functioning and school functioning. Children with congenital, rare disorders often require assistance from many parts of the public service system. Caring for their physical needs should not conflict with their educational and social needs. It is important that the children's school-life is organized so that the diagnosis does not interfere with the children's education and social life more than necessary.
- Open Access
- 27 February 2007
- Published by Springer Nature in Orphanet Journal of Rare Diseases
- Vol. 2 (1) , 10
Health status of adults with Short Stature: A comparison with the normal population and one well-known chronic disease (Rheumatoid Arthritis)
To examine the subjective health status of adults with short stature (ShSt) and compare with the general population (GP) and one well-known chronic disease, rheumatoid artritis (RA). In addition, to explore the association between age, gender, height, educational level and different aspects of health status of adults with short stature.
- 27 February 2007
- Published by Springer Nature in Orphanet Journal of Rare Diseases
- Vol. 2 (1) , 10
Open AccessHealth status of adults with Short Stature: A comparison with the normal population and one well-known chronic disease (Rheumatoid Arthritis)
To examine the subjective health status of adults with short stature (ShSt) and compare with the general population (GP) and one well-known chronic disease, rheumatoid artritis (RA). In addition, to explore the association between age, gender, height, educational level and different aspects of health status of adults with short stature.