Jason Craw

To characterize U.S. adults with perinatally acquired HIV (lifetime survivors), a cross-sectional analysis of adults at least 18 years old and born with HIV or received an HIV diagnosis within 12 months of birth ( N = 292) using 2015–2022 cycle Medical Monitoring Project data was conducted. Weighted percentages and 95% confidence intervals for demographics, social determinants, and HIV outcomes were calculated. On average, lifetime survivors were 62% women, 58% Black, and 26% Hispanic/Latino; one third were more than 30 years old. Half lived in poverty, 21% had unstable housing, 93% received HIV care, but only 43% had sustained viral suppression over the past 12 months. Most rated their health good or better and were satisfied with HIV care. Lifetime survivors face major socioeconomic challenges and low rates of viral suppression. Expanding adherence support, responsive trauma-informed care, access to long-acting ART, and addressing housing could improve outcomes and quality of life and well-being.

Background: Measuring the capacity of HIV medical facilities to deliver quality treatment and prevention care to people with HIV is essential to the over 1 million Americans living with HIV and supports federal efforts to end the HIV epidemic. To fill this gap and complement the ongoing Medical Monitoring Project—which conducts annual surveys of people with HIV and periodic surveys of HIV care providers—the US Centers for Disease Control and Prevention (CDC) and RTI (Research Triangle Institute) International conducted the Medical Monitoring Project Facility Survey (MMPFS). Objective: We aimed to describe the survey methods designed to achieve a high response rate from the 1022 facilities providing care to people with HIV as part of the Medical Monitoring Project—including frame development, survey instrument development, facility recruitment, and postsurvey data processing. Methods: For the MMPFS, the CDC and RTI developed a sequential multimode data collection approach (paper, web, and phone), including an abbreviated nonresponse follow-up (NRFU) instrument and the collection of administrative data for all facilities. Data were then processed to produce raw, imputed, and weighted datasets. Analyses included comparisons of responses to the full survey and NRFU survey. Results: The full MMPFS survey yielded 455 complete survey respondents and the NRFU survey yielded 59 complete survey responses, a combined response rate of 50.3% (514/1022). A nonresponse bias analysis comparing the 2 surveys found a significant difference in the raw datasets for 4 (12%) of the 34 categorical variables that were identical between the 2 surveys (all P>.0014). Weighted and imputed datasets were then generated and compared. There was no significant difference between the 2 datasets for any variable (all P>.05). Conclusions: The CDC and RTI’s MMPFS methodology proved to be a valuable means of collecting data from HIV care providers and providing estimates for facility characteristics related to the provision of health care for people with HIV. The combined response rate allowed the CDC and RTI to generate facility-level estimates and an imputed dataset that can be linked to MMPFS patient data. The methods may be applied to other facility survey studies.

Journal of Medical Internet Research - International Scientific Journal for Medical Research, Information and Communication on the Internet #Preprint #PeerReviewMe: Warning: This is a unreviewed preprint. Readers are warned that the document has not been peer-reviewed by expert/patient reviewers or an academic editor, may contain misleading claims, and is likely to undergo changes before final publication, if accepted, or may have been rejected/withdrawn. Readers with interest and expertise are encouraged to sign up as peer-reviewer, if the paper is within an open peer-review period. Please cite this preprint only for review purposes or for grant applications and CVs (if you are the author). Background: Measuring the capacity of HIV medical facilities to deliver quality treatment and prevention care to people with HIV is essential to the over 1 million Americans living with HIV and supports federal efforts to end the HIV epidemic. To fill this gap and complement the ongoing Medical Monitoring Project—which conducts annual surveys of people with HIV and periodic surveys of HIV care providers—the US Centers for Disease Control and Prevention (CDC) and RTI (Research Triangle Institute) International conducted the Medical Monitoring Project Facility Survey (MMPFS). Objective: We aimed to describe the survey methods designed to achieve a high response rate from the 1022 facilities providing care to people with HIV as part of the Medical Monitoring Project—including frame development, survey instrument development, facility recruitment, and postsurvey data processing. Methods: For the MMPFS, the CDC and RTI developed a sequential multimode data collection approach (paper, web, and phone), including an abbreviated nonresponse follow-up (NRFU) instrument and the collection of administrative data for all facilities. Data were then processed to produce raw, imputed, and weighted datasets. Analyses included comparisons of responses to the full survey and NRFU survey. Results: The full MMPFS survey yielded 455 complete survey respondents and the NRFU survey yielded 59 complete survey responses, a combined response rate of 50.3% (514/1022). A nonresponse bias analysis comparing the 2 surveys found a significant difference in the raw datasets for 4 (12%) of the 34 categorical variables that were identical between the 2 surveys (all P>.0014). Weighted and imputed datasets were then generated and compared. There was no significant difference between the 2 datasets for any variable (all P>.05). Conclusions: The CDC and RTI’s MMPFS methodology proved to be a valuable means of collecting data from HIV care providers and providing estimates for facility characteristics related to the provision of health care for people with HIV. The combined response rate allowed the CDC and RTI to generate facility-level estimates and an imputed dataset that can be linked to MMPFS patient data. The methods may be applied to other facility survey studies.

Background: The Medical Monitoring Project (MMP) is a national population-based behavioral and clinical surveillance system of adults with diagnosed HIV in the United States, and it is sponsored by the Centers for Disease Control and Prevention (CDC). Its purpose is to provide locally and nationally representative estimates of factors affecting HIV transmission risk and clinical outcomes. Objective: This study aimed to describe the rationale for and methodology of the MMP, in addition to its contribution to evaluating and monitoring HIV prevention, care, and treatment efforts in the United States. Methods: MMP employs a stratified 2-stage sample design to select annual samples of persons living with diagnosed HIV from the National HIV Surveillance System and conducts interviews and medical record abstractions with participating persons. Results: MMP data are published routinely via annual reports, conference presentations, and scientific publications. Data may be accessed upon request from the CDC, contingent on the guidelines established for the security and confidentiality of HIV surveillance data. Conclusions: MMP is the only source of annual population-based data on the behaviors and clinical care of persons with diagnosed HIV in the United States. It provides essential information for monitoring progress toward national treatment and prevention goals and guiding efforts to improve the health of persons with diagnosed HIV and prevent HIV transmission. International Registered Report Identifier (IRRID): RR1-10.2196/15453