Hélène L. Hooimeijer
Current Organizations / Institutes
The organizations/institutes from the scholar's latest article
Previous Organizations / Institutes
The organizations / institutes from the scholar's other articles in the past ten years
Research Subjects
Hélène L. Hooimeijer has a total of 69 co-authors. Here are the top co-authors by number of shared publications:
- Floor C. J. I. Heubel-Moenen
Department of Haematology, Maastricht University Medical Centre+, Maastricht, the Netherlands
2 shared publications - Lize F. D. van Vulpen
Center for Benign Haematology, Thrombosis & Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands
2 shared publications - Marjon Hester Cnossen
Department of Pediatric Hematology and Oncology, Erasmus MC Sophia Children's Hospital University Medical Center Rotterdam Rotterdam The Netherlands
2 shared publications - Michiel Coppens
Amsterdam UMC
2 shared publications - Paula F. Ypma
Department of Internal Medicine, Haga Hospital, Den Haag, Netherlands
2 shared publications - Saskia E. M. Schols
Department of Hematology Radboud University Medical Center Nijmegen The Netherlands
2 shared publications
Latest Publications
- Open Access
- 8 November 2025
- Published by Elsevier in Journal of Thrombosis and Haemostasis
- Vol. 24 (3) , 890-899
Pharmacokinetic-guided dose reduction of emicizumab in congenital hemophilia A: interim analysis of the DosEmi study
- 8 November 2025
- Published by Elsevier in Journal of Thrombosis and Haemostasis
- Vol. 24 (3) , 890-899
Open AccessPharmacokinetic-guided dose reduction of emicizumab in congenital hemophilia A: interim analysis of the DosEmi study
- Open Access
- 21 August 2023
- Published by Wiley in Haemophilia
- Vol. 29 (5) , 1191-1201
Transition readiness among adolescents and young adults with haemophilia in the Netherlands: Nationwide questionnaire study
Introduction: Care for adolescents with haemophilia is transferred from paediatric to adult care around the age of 18 years. Transition programs help to prepare adolescents for this transfer and prevent declining treatment adherence. Evaluating transition readiness may identify areas for improvement.Objective: Assess transition readiness among Dutch adolescents and young adults with haemophilia, determine factors associated with transition readiness, and identify areas of improvement in transition programs.Methods: All Dutch adolescents and young adults aged 12–25 years with haemophilia were invited to participate in a nationwide questionnaire study. Transition readiness was assessed using multiple‐choice questions and was defined as being ready or almost ready for transition. Potential factors associated with transition readiness were investigated, including: socio‐demographic and disease‐related factors, treatment adherence, health‐related quality of life, and self‐efficacy.Results: Data of 45 adolescents and 84 young adults with haemophilia (47% with severe haemophilia) were analyzed. Transition readiness increased with age, from 39% in 12–14 year‐olds to 63% in 15–17 year‐olds. Nearly all post‐transition young adults (92%, 77/84) reported they were ready for transition. Transition readiness was associated with treatment adherence, as median VERITAS‐Pro treatment adherence scores were worse in patients who were not ready (17, IQR 9–29), compared to those ready for transition (11, IQR 9–16). Potential improvements were identified: getting better acquainted with the adult treatment team prior to transition and information on managing healthcare costs.Conclusions: Nearly all post‐transition young adults reported they were ready for transition. Improvements were identified regarding team acquaintance and preparation for managing healthcare costs.
- 21 August 2023
- Published by Wiley in Haemophilia
- Vol. 29 (5) , 1191-1201
Open AccessTransition readiness among adolescents and young adults with haemophilia in the Netherlands: Nationwide questionnaire study
Introduction: Care for adolescents with haemophilia is transferred from paediatric to adult care around the age of 18 years. Transition programs help to prepare adolescents for this transfer and prevent declining treatment adherence. Evaluating transition readiness may identify areas for improvement.Objective: Assess transition readiness among Dutch adolescents and young adults with haemophilia, determine factors associated with transition readiness, and identify areas of improvement in transition programs.Methods: All Dutch adolescents and young adults aged 12–25 years with haemophilia were invited to participate in a nationwide questionnaire study. Transition readiness was assessed using multiple‐choice questions and was defined as being ready or almost ready for transition. Potential factors associated with transition readiness were investigated, including: socio‐demographic and disease‐related factors, treatment adherence, health‐related quality of life, and self‐efficacy.Results: Data of 45 adolescents and 84 young adults with haemophilia (47% with severe haemophilia) were analyzed. Transition readiness increased with age, from 39% in 12–14 year‐olds to 63% in 15–17 year‐olds. Nearly all post‐transition young adults (92%, 77/84) reported they were ready for transition. Transition readiness was associated with treatment adherence, as median VERITAS‐Pro treatment adherence scores were worse in patients who were not ready (17, IQR 9–29), compared to those ready for transition (11, IQR 9–16). Potential improvements were identified: getting better acquainted with the adult treatment team prior to transition and information on managing healthcare costs.Conclusions: Nearly all post‐transition young adults reported they were ready for transition. Improvements were identified regarding team acquaintance and preparation for managing healthcare costs.