Anne Skov Vastrup

Journal of Medical Internet Research - International Scientific Journal for Medical Research, Information and Communication on the Internet #Preprint #PeerReviewMe: Warning: This is a unreviewed preprint. Readers are warned that the document has not been peer-reviewed by expert/patient reviewers or an academic editor, may contain misleading claims, and is likely to undergo changes before final publication, if accepted, or may have been rejected/withdrawn. Readers with interest and expertise are encouraged to sign up as peer-reviewer, if the paper is within an open peer-review period. Please cite this preprint only for review purposes or for grant applications and CVs (if you are the author). Atopic Dermatitis (AD) is a widespread disease that affects up to 20% of the population in affluent countries. The disease and its impact have been studied on many surveys performed either through mail or telephone or on site in hospitals. These methods are however often laborious and costly. To investigate if outreach through social media can be used to recruit AD patients and if the data obtained are robust, clinically relevant and reflects what has been found in surveys so far. Patients with AD were invited to answer an online questionnaire on disease severity, treatment, and effect on daily quality of life. The participants were invited through the Facebook site of the Danish Atopic Dermatitis Patients Organization. We found that when using Facebook for outreach there were significantly more female respondents than would be expected, the average age was lower than the average age in Denmark, and significantly more respondents than expected had an educational level of at least bachelor’s degree. Disease severity was skewed towards more severe AD than would be expected from general population studies, however the patients were also recruited through a patient organization. The use of proactive versus reactive treatment was also investigated, and patients with severe AD has longer use of reactive treatment and were more prone to use proactive treatment. In this study we show that social media (Facebook) can be used for outreach to recruit AD respondents for surveys. Our results also show that data maybe are skewed towards females, young age, and high educated, which are those who use the social media for information finding of health-related issues. On the other, the survey was cheap and the results did reflect what we already know from other surveys and that clinical useful data can be obtained.

Journal of Medical Internet Research - International Scientific Journal for Medical Research, Information and Communication on the Internet #Preprint #PeerReviewMe: Warning: This is a unreviewed preprint. Readers are warned that the document has not been peer-reviewed by expert/patient reviewers or an academic editor, may contain misleading claims, and is likely to undergo changes before final publication, if accepted, or may have been rejected/withdrawn. Readers with interest and expertise are encouraged to sign up as peer-reviewer, if the paper is within an open peer-review period. Please cite this preprint only for review purposes or for grant applications and CVs (if you are the author). Background: Atopic Dermatitis (AD) is a widespread disease that affects up to 20% of the population in affluent countries. The disease and its impact have been studied on many surveys performed either through mail or telephone or on site in hospitals. These methods are however often laborious and costly. Objective: To investigate if outreach through social media can be used to recruit AD patients and if the data obtained are robust, clinically relevant and reflects what has been found in surveys so far. Methods: Patients with AD were invited to answer an online questionnaire on disease severity, treatment, and effect on daily quality of life. The participants were invited through the Facebook site of the Danish Atopic Dermatitis Patients Organization. Results: We found that when using Facebook for outreach there were significantly more female respondents than would be expected, the average age was lower than the average age in Denmark, and significantly more respondents than expected had an educational level of at least bachelor’s degree. Disease severity was skewed towards more severe AD than would be expected from general population studies, however the patients were also recruited through a patient organization. The use of proactive versus reactive treatment was also investigated, and patients with severe AD has longer use of reactive treatment and were more prone to use proactive treatment. Conclusions: In this study we show that social media (Facebook) can be used for outreach to recruit AD respondents for surveys. Our results also show that data maybe are skewed towards females, young age, and high educated, which are those who use the social media for information finding of health-related issues. On the other, the survey was cheap and the results did reflect what we already know from other surveys and that clinical useful data can be obtained.