Rosario Fernández-Peña

COVID‐19 public health measures significantly disrupted personal support relationships among community‐dwelling family dementia caregivers. In this research, a personal network analysis was carried out to understand the dynamics in the personal support relationships of caregivers caring for persons living with dementia (PLwD) during the pandemic. The analysis focuses on variables comprising the caregivers' personal network, attributes of their alters, and the functional content in social support, as well as changes therein, before and during the pandemic. A total of 78 caregivers took part in the study, leading to an extensive analysis of 658 caregivers' personal relationships. Bivariate and multivariate regression analyses were performed to identify the characteristics of personal relationships associated with changes in the support received. The variables influencing changes were the type of tie with the caregiver and the type of support provided. The type of tie that presented the greatest positive change in support was that of caregivers' partners. In contrast, that of caregivers and health and social professionals presented the most significant negative change. Finally, the most positive change was observed in relationships that provided both emotional and informational support, whereas the least positive change occurred in relationships that offered instrumental support.

Background: Compassion fatigue is the emotional response generated by continuous exposure to human suffering and is especially common among nursing professionals. This phenomenon can lead to decreased empathy and increased emotional exhaustion while affecting the quality of care.Aim: To synthesize information from primary studies that have used and evaluated interventions aimed at managing compassion fatigue in nursing professionals.Design: A systematic review with meta‐analysis of studies with randomized and nonrandomized control groups.Methods: Medline, CINAHL, Scopus, and Web of Science databases were searched for studies published between 2013 and 2023. The search was conducted in January 2024 to identify control group studies that provided quantitative pre–post data on both groups of compassion fatigue assessed with the Professional Quality of Life Scale (ProQol). Quality was assessed using the RoB2 and ROBINS‐I scales. The protocol was registered in the International Prospective Register of Systematic Reviews (CRD42024537935).Results: The search strategy yielded a total of 1006 records, of which 11 studies were selected; these provided a total of 763 participants. Most of the interventions consisted of providing knowledge and skills to increase resilience, emotional well‐being, and stress coping. The interventions had an average duration of 6 weeks distributed in 9 sessions with an average of 90 minutes. After the intervention, a statistically significant increase in satisfaction was obtained and a statistically significant reduction in fatigue and burnout.Conclusion and Implications for Nursing and/or Health Policy: Interventions aimed at reducing compassion fatigue are effective among nursing professionals. In the future, further high‐quality research with prospective follow‐up designs is required.

Objetivo principal: Conocer los sentimientos sobre la muerte en estudiantes de grado de enfermería que aún no han iniciado su prácticum en entornos asistenciales reales. Metodología: Estudio observacional de tres cohortes con análisis de pregunta abierta. La Escala de Miedo a la Muerte de Collet-Lester, el Cuestionario de factores para ayudar a morir en paz y un cuestionario con 6 preguntas abiertas fueron completados por 197 estudiantes de segundo curso de Grado de Enfermería. Resultados principales: Los estudiantes reconocen tener miedo de enfrentar la muerte en el prácticum, principalmente temen que les afecte personalmente, la reacción del paciente, el contacto con la muerte y el no saber qué hacer. Conclusión principal: Los estudiantes consideran que la muerte es algo muy presente en su profesión, expresan temer enfrentarse a ella en el prácticum, mayoritariamente reconocen no tener suficientes estrategias de afrontamiento y les gustaría recibir más formación para saber cómo afrontarla.

Background: In recent decades, the literature on Social Network Analysis and health has experienced a significant increase. Disease transmission, health behavior, organizational networks, social capital, and social support are among the different health areas where Social Network Analysis has been applied. The current epidemiological trend is characterized by a progressive increase in the population’s ageing and the incidence of long-term conditions. Thus, it seems relevant to highlight the importance of social support and care systems to guarantee the coverage of health and social needs within the context of acute illness, chronic disease, and disability for patients and their carers. Thus, the main aim is to identify, categorize, summarize, synthesize, and map existing knowledge, literature, and evidence about the use of Social Network Analysis to study social support and care in the context of illness and disability.Methods: This scoping review will be conducted following Arksey and O'Malley's framework with adaptations from Levac et al. and Joanna Briggs Institute’s methodological guidance for conducting scoping reviews. We will search the following databases (from January 2000 onwards): PubMed, MEDLINE, Web of Science Core Collection, SCOPUS, CINAHL, PsycINFO, Cochrane Database of Systematic Reviews, PROSPERO, and DARE. Complementary searches will be conducted in selected relevant journals. Only articles related to social support or care in patients or caregivers in the context of acute illnesses, disabilities or long-term conditions will be considered eligible for inclusion. Two reviewers will screen all the citations, full-text articles, and abstract the data independently. A narrative synthesis will be provided with information presented in the main text and tables.Discussion: The knowledge about the scientific evidence available in the literature, the methodological characteristics of the studies identified based on Social Network Analysis, and its main contributions will highlight the importance of health-related research's social and relational dimensions. These results will shed light on the importance of the structure and composition of social networks to provide social support and care and their impact on other health outcomes. It is anticipated that results may guide future research on network-based interventions that might be considered drivers to provide further knowledge in social support and care from a relational approach at the individual and community levels.Trial registration: Open Science Frameworkhttps://osf.io/dqkb5.

Social support networks occupy a priority position requiring attention in the processes of social inclusion of people with intellectual disabilities, during their transition to adult life. The objective of the study was to analyze social support from a relational approach through Personal Network Analysis. A total of 41 young people with mild intellectual disabilities participated in the study, in two groups differentiated according to their educational stage, either compulsory secondary education or post-compulsory training. Descriptive and comparative results are presented based on the variables of structure, composition, and functional content in the social support of their personal networks. The results show that both groups have restricted personal networks, made up of members of the family and the educational environment who constitute the main providers of support. When moving towards adult life, the change in social contacts in other educational, geographical, and relational settings may mean a change in the provision of support received in previous life stages. Developing social and educational actions to support these people in the development and maintenance of social relationships is essential to their access to support resources that will affect their social inclusion.

Technological changes have led to important advances in medical diagnoses and treatments that prolong the informal care process. Support from the personal network of informal caregivers is an undervalued resource and the changes that have occurred over time are unknown. The aim of this study was to analyze the changes in personal network support among informal caregivers and to examine the effect of these changes on self-perceived caregiver health, with a focus on differences between men and women and caregivers with high and low levels of burden We also investigated caregiver perceptions and explanations of changes to their support network (losses and additions and no change). Using a mixed-methods approach, data were obtained from 32 caregivers that were intentionally selected in Spain, who were interviewed twice with a one-year interval. In the quantitative phase, personal networks analysis was performed with Egonet software, which obtained data on the composition and functional content in social support from 1600 personal relationships (25 alters for each ego in the two waves). In the qualitative phase, semi-structured interviews were conducted in the two waves with a guide in order to explore the changes in informal support resources over time. The selected men with high levels of burden pointed out a loss of network support with more discouraging reports compared with the low-burden male caregivers. Furthermore, the selected women with low burden levels mentioned losses too; however, their reports were more positive. Women reported improved health, especially those with low burden scores in the first wave and those who did not lose support. Caregivers with a high initial burden and who lost support reported worse health, particularly men and women with a strong sense of duty toward care. Social support from personal networks is important for caregiver health and its effects are influenced by gender roles. Our findings could help by improving the relational and social capital of informal caregivers and adapting them to the new needs of formal home care systems.

The COVID-19 pandemic has had significant repercussions for nursing home residents, their families, and professionals. The objective was to describe the perspectives of residents, their families, and nursing home employees during the COVID-19 pandemic. A scoping review was carried out using the PRISMA Extension for Scoping Reviews. The inclusion criteria were: qualitative and/or mixed methods studies in English, French, Portuguese, and Spanish. The review covers studies published from 11 March 2020 to 15 February 2021. CINAHL, PubMed, Web of Science, ScienceDirect, Scopus, British Nursing Index, Proquest, PsycInfo, and Google Scholar databases were used. We conducted a systematic narrative synthesis, presenting the results narratively and showing descriptive statistics on the studies reviewed. Sixteen documents were obtained from 175 results. Two studies focused on residents and one on their families. The remaining studies looked at professionals. Nursing homes had great difficulty managing resources, which was exacerbated by emotional exhaustion among residents, employees, and family members. In nursing homes, creative initiatives and new forms of leadership appeared to meet emerging needs during the pandemic. The results of the study show the impact of the pandemic on nursing homes and the response capacity present among residents, family members, and professionals.