Maëlle Corcuff

Participatory research is particularly relevant to understanding the challenges faced by people with disabilities (PWDs), as it actively involves them as partners. This collaboration enables research methodologies to be better adapted to their lived realities, producing more relevant and applicable results. By involving PWDs directly, participatory research helps reduce systemic barriers, promotes inclusion and leads to a deeper understanding and more thoughtful consideration of their specific needs within the research process. Yet, studies have identified hurdles associated with this approach, prompting questions about how organizations portray PWDs, the dynamics among research stakeholders, the distribution of decision-making power, and the actual impact of research on its partners. This study aims to identify the factors that influence the process and results of participatory research in the field of disability studies. We conducted a mapping review following the PRISMA-ScR guidelines, and analyzed the results according to the input-throughput-outcomes Bergen model. 42 studies were included in the analysis. We identified partners skills and training, power sharing and benefits of active involvement as facilitators of participatory research. On the other hand, contextual challenges, and lack of guidance are reported as obstacles. This study provides insight into the various facilitators and barriers to participatory research. It also explores how different research processes interact to produce positive, valid and rigorous results.

The efficacious implementation of robotic assistive technologies must be built on a thorough understanding of the experiences and perceptions of all concerned interest groups, particularly those of users and their caregivers. This study provides an in-depth insight into the experiences and perceptions of users of the JACO wheelchair-mounted robotic arm and those of their caregivers. Users of JACO (n = 21; Female: 6; Male: 15) and caregivers (n = 11; Female: 9; Male: 2) participated in individual interviews used to gain qualitative insight into the impact of JACO on their day-to-day lives. Interview transcripts were analyzed using a hybrid deductive-inductive coding process. Thematic analysis was conducted in accordance with the Consortium on Assistive Technology Outcomes Research (CATOR) taxonomy. This article exclusively reports data on the social impact of the JACO wheelchair-mounted robotic arm. In addition, participants completed three questionnaires to gather more objective data for quantitative assessment. These included the Caregiver Assistive Technology Outcome Measure (CATOM), a sociodemographic questionnaire, and a home-based questionnaire to assess the social impact of using JACO. Findings pointed to highly varied experiences among participants, including instances of positive, negative, and absence of effects from the use of JACO. Participants' feedback fell within two broad categories, Human Assistance, and Cost and Use of Resources. This study provides nuanced and varied insight into the spectrum of the social impact of using JACO as perceived by users and their caregivers, highlighting the importance of considering each user as an individual with unique experiences and needs.

Introduction Participatory research is particularly relevant to understanding the challenges faced by people with disabilities (PWDs), as it actively involves them as partners, enabling methodologies to be better adapted to lived realities and producing more relevant and applicable results. By reducing systemic barriers and promoting inclusion, this approach improves understanding and consideration of the specific needs of PWDs in research. Yet, studies have identified hurdles associated with this approach, prompting questions about how organizations portray PWDs, the dynamics among research stakeholders, the distribution of decision-making power, and the actual impact of research on its partners. Aim This study aims to identify the factors that influence the process and results of participatory research in the field of disability studies Methods We conducted a mapping review following the PRISMA-ScR guidelines, and analysis the results according to the input-throughput-outcomes Bergen model Results This study identifies partners skills and training, power sharing and benefits of active involvement as facilitators of participatory research. On the other hand, contextual challenges, and lack of guidance are reported as obstacles. Conclusion This study provides insight into how the various facilitators and obstacles to participatory research and its different processes interact to produce positive, valid and rigorous results.

The efficacious implementation of robotic assistive technologies must be built on a thorough understanding of stakeholders' experiences and perceptions. This study provides an in-depth insight into the experiences and perceptions of users of the JACO wheelchair-mounted robotic arm and those of their caregivers. A sample of JACO users (n = 21; Female : 6; Male : 15) and caregivers (n = 11; Female: 2; Male: 9) participated in individual interviews used to gain qualitative insight into the impact of JACO on their day-to-day lives. Interview transcripts were analyzed using a hybrid deductive-inductive coding process. Thematic analysis was conducted in accordance with the Consortium on Assistive Technology Outcomes Research (CATOR) taxonomy. This article exclusively reports data on the social impact of the JACO wheelchair-mounted robotic arm. In addition, participants completed three questionnaires to gather more objective data for quantitative assessment, these included the Caregiver Assistive Technology Outcome Measure (CATOM), a sociodemographic questionnaire, and a home-based questionnaire to assess the social impact of using JACO. Findings pointed to highly varied experiences among participants, including instances of positive, negative, and absence of effects from the use of JACO. Participants' feedback fell within two broad categories, Human Assistance, and Cost and Use of Resources. This study provides nuanced and varied insight into the spectrum of the social impact of using JACO as perceived by users and their caregivers, highlighting the importance of considering each user as an individual with unique experiences and needs. Continued research is needed to assess the generalizability of these findings.

Background Cities aim to enhance urban accessibility following the adoption of the United Nations’ Convention on the Rights of Persons with Disabilities. However, implementation faces challenges due to complex municipal legislation, lack of awareness, and organizational obstacles. Engaging stakeholders and empowering municipal employees through knowledge mobilization is crucial, as shown in a Quebec City’s partnership research process. Aim To report the implementation strategy as implemented, explore the perception of the employees about the format and feasibility of the implementation strategy and explore the induced changes of knowledge mobilization tools on the implementation determinants of universal accessibility measures for municipal employees. Methods The study used a multi-method design, involving interviews and a questionnaire with the project steering committee, made up of city employees and the research team. Three 30-minute participatory workshops were conducted for culture, communications, and public consultation administrative units. Results Participants appreciated the workshop format and video content, suggesting minor improvements for broader implementation. The tools effectively increased engagement in implementing universal accessibility measures, proving valuable for raising awareness. Discussion and Conclusion The study demonstrates the advantages of a collaborative approach in developing knowledge mobilization tools, enhancing municipal personnel’s capacity for universal accessibility measures, and highlighting the need for adaptable strategies. Contributions to the litterature Knowledge mobilization tools created in partnership with knowledge users encourage buy-in and a positive view of the tools. An interactive implementation strategy actively involving knowledge users promotes awareness and behavior change Municipal organizations’ context being complex, the implementation strategy must be adapted to each group of people and their reality to facilitate the implementation and adoption of the tools. The combined use of a theoretical framework and a participatory approach provides a guideline for the development of tools and implementation, while adapting to the specific context.

To identify partnership research challenges and facilitators, as experienced by members of the Inclusive Society (IS) initiative.A case study was conducted on all partnership research projects cond... Partnership research has the potential to contribute to a more inclusive society for people with disabilities.Challenges and facilitators are identified for the stages of creating, implementing, an...

According to the UN-CRPD, cities must develop action plans about universal accessibility (UA). Operationalization of these plans is complex, and little is known about what municipal employees know about UA. Aim: The aim is to document implementation determinants of UA within a municipal organization in Quebec, Canada. Methods: An observational cross-sectional study was performed. Employees answered a survey based on the TDF and the DIBQ. Facilitators, barriers, and factors influencing the determinants were identified. Results: A total of 43% of the employees completed the survey. The implementation of UA measures is more facilitated by their beliefs about the impact on citizens, while the external context hinders the proper implementation. It is also influenced by six factors: (1) professional role, (2) capacity, (3) resources, (4) willingness, (5) characteristics, and (6) feedback. Discussion: Results suggest that understanding the consequences, sufficient resources, abilities, and willingness can influence implementation of UA. Conclusion: These findings have informed the objectives of the next action plan of the municipal organization and could guide the development of solutions.

Background: Since the publication of the Convention on the Rights of Persons with Disabilities, several countries have adopted laws, policies, and action plans to improve the universal accessibility of environments to improve inclusion and social participation of all citizens. Different organizations are involved in the application of these measures. Objective: The aim of this study is to identify strategies that are contextually appropriate and provide guidelines for organizations to promote successful implementation of universal accessibility. Methods: We will conduct a scoping review identifying implementation strategies of universal accessibility measures in local organizations using the Arksey and O’Malley framework. We will search in Medline, CINHAL, Urban Studies Abstracts, ABI Inform, and Social Sciences Full Text from 2006 until today, following the adoption of the Convention on the Rights of Persons with Disabilities. Two reviewers will independently select studies for inclusion and will extract the data. A descriptive and thematic analysis of the characteristics of the identified implementation strategies will be performed. Results: Implementation strategies will be summarized in tables. They will then be linked to various constructs and domains listed in the Theoretical Domain Framework to identify barriers and facilitators of organizations’ uptake of evidence-based strategies of implementation. Conclusions: We will tabulate the characteristics of the included studies and the outcomes of implementation strategies in them. The results of this scoping review are expected to help the research community in various fields, local organizations, and stakeholders to identify better ways to improve implementation strategies of universal accessibility practices. International Registered Report Identifier (IRRID): PRR1-10.2196/33641

BACKGROUND Since the publication of the Convention on the Rights of Persons with Disabilities, several countries have adopted laws, policies, and action plans to improve the universal accessibility of environments to improve inclusion and social participation of all citizens. Different organizations are involved in the application of these measures. OBJECTIVE The aim of this study is to identify strategies that are contextually appropriate and provide guidelines for organizations to promote successful implementation of universal accessibility. METHODS We will conduct a scoping review identifying implementation strategies of universal accessibility measures in local organizations using the Arksey and O’Malley framework. We will search in Medline, CINHAL, Urban Studies Abstracts, ABI Inform, and Social Sciences Full Text from 2006 until today, following the adoption of the Convention on the Rights of Persons with Disabilities. Two reviewers will independently select studies for inclusion and will extract the data. A descriptive and thematic analysis of the characteristics of the identified implementation strategies will be performed. RESULTS Implementation strategies will be summarized in tables. They will then be linked to various constructs and domains listed in the Theoretical Domain Framework to identify barriers and facilitators of organizations’ uptake of evidence-based strategies of implementation. CONCLUSIONS We will tabulate the characteristics of the included studies and the outcomes of implementation strategies in them. The results of this scoping review are expected to help the research community in various fields, local organizations, and stakeholders to identify better ways to improve implementation strategies of universal accessibility practices. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/33641